So I’m new to all this, I’ve been referred to see a specialist so still waitingfor a diagnosis. My symptoms started 13/14 yrs ago when I developed a tremor in my hand that eventually travelled into my arm, my Dr always put it down to anxiety and did nothing about it. I always knew something was wrong but was not being heard, then last year new symptoms started such as my foot would feel like it was dragging, frozen shoulder feeling and my hands wouldn’t work properly when picking things up all my symptoms mainly affected my right side more then my left.
I’ve never known much about family history as I was adopted as a baby but I did have a aunty from my biological side that I spoke to. Then in January this year I was telling her about my symptoms and she had mentioned that my biological mum has parkinsons and also her aunty and grandad had it aswell.
So back to the Dr’s I went. My previous Dr had retired so now I have a new one who actually listens to me and has referred me to see a specialist. I feel like I’m finally getting listened to which is great because my symptoms seem to be progressing more.
Any advise on any thing would be great. I think the fact that I’ve been dealing with this for many years but finally getting sorted is becoming a bit overwhelming my emotions are all over the place with it all. I have a very supportive family and my workplace has been amazing.
Hi @Mimmi, firstly a huge welcome to the Forum. We’re really pleased to have you here and we hope you enjoy the space and are able to connect with others experiencing something similar to you.
Thank you for sharing what you are going through. Feeling overwhelmed now you finally feel listened to is completely normal. It’s great to hear you have a supportive family unit and workplace around you. We are also here to support you if you need.
On our website, we have a whole range of information which will help you better understand Parkinson’s and also give you support options should you need it. There is also a checklist of things to do for people newly diagnosed with Parkinson’s and information about how Parkinson’s can be passed through generations. You can find it all here: Information and resources | Parkinson's UK
We also have a free, confidential helpline on 0808 800 0303. Our specialists will be happy to answer any questions you have, offer advice as you navigate this process and signpost you to other relevant support that may help you. The helpline is open Monday to Friday, 9am to 6pm and 10am to 1pm on Saturday.
We hope this is useful. Please take care and reach out if there is anything we can do.
