Hi, I am new to the site but really need to talk. My dad has had Parkinsons disease for 18 years now, he was a really fit bloke when he was diagnosed, and his consultant reckons thats whats kept him going so long. Hes always been a fighter, independant in every thing including his medication, moreso since my mam died 4 years ago.
At the beginning of January, he dropped his tablet box a couple of times whilst sorting his meds then had great difficulty in remembering which tablets he took. As he had been so independant I wasn't sure what he took when, any way we managed to sort it out but he seemed to become slightly obsessed with his tablets and trying to sort them out. A week or so later he ended up in hospital and was diagnosed with pneumonia and gout.He was on IV antobiotics for a few days and came home after a week.During his stay in hospital,we had a good talk and agreed that he needed extra carers to help him ( he had one visit a day previously, but now has three). He seemed okay and I continued sorting his meds out until we got a blister pack organised with the pharmacy. He seemed to be picking up last week with the extra care and on sunday looked the best I have seen him for ages ( I go every day to see him) , but on monday morning he rang in a right state saying he couldn't get his tablets out of the blister. This was 6am , but I am always up about then so I went down and helped him with them, and had to leave him notes to take what at what time while I was at work. When I went after work he had totally destroyed his blister pack, so I had to put his tablets back in his box. Of course the carers couldn't help with the tablets after this as they weren't in a packet. Yesterday his neighbour rang me at work to tell me he had tablets everywhere trying to sort them out ( I had already sorted them ), then today he was writhing in pain when I got there this afternoon, but had been outside trying to open the bolt on the shed door with a pair of pliers. I have been to his house 3 times since 3pm today, and after giving him some strong painkillers he had settled when I called down the last time.
I have tried to ring the Parkinsons nurse but she is on holiday, I have tried to speak to his consultants secretary but after leaving a message she didn't get back to me, so now I have to wait to speak to his gp on friday with a phone call. I am worn out emotionally and physically what with work, my own family commitments and caring for dad who I am very close to , and dont know where to turn any more. I have no siblings and no extended family living close by, so it all falls to me. I have been playing the roll of carer for about 7 years now as I looked after my mam when she was diagnosed with cancer and I am so tired. Work is the only place I can focus and often have a dread of coming home as I don't know what to expect these days. Can anyone give me any advice on what to do as I really don't know anymore.