I have joined to find out more about PD so I can help and support my dad who was diagnosed with PD 3 years ago after a barrage of tests for various cancers. From what he shared with us it appeared to be something wrong with his digestion/colon/uninary system but he has since revealed that he secretly believed he was starting the symptoms of Alzheimers so he must have had other symptoms. I'm not sure what sort he has - he doesn't have shakes but is very stiff and very slow. Originally they thought he had Multiple Systems Atrophy but they have backtracked on that a bit now.
To be honest I have been in a bit of denial about it, choosing to look away when he takes his multitude of tablets, or cheerfully help him when he can't do the zip of his jacket up but inside it's tearing me apart. I want my strong, able dad back, not the stooped old man he suddenly started to turn into about 6 years ago. I want him to be able to pick my little girl up, play football with her. I want him to travel and enjoy his retirement. This cruel disease had taken so much away from him.
He is trying to take control and goes to the gym to exercise every day and is always at the docs trying to control his symptoms. Him and my mum have been on seperate trips to NZ and Australia in the last year and are off to the states in a couple of months but I can't help feeling it's more because he feels he should do stuff because one day he won't be able. Almost forced if that makes sense. And my poor mum is knackered from all the travel
To put things in context, I am 40 and my dad is 67 so it's not like we shouldn't be prepared for some sort of ill health but why PD?
Sorry, this sounds a bit self indulgent.