Newcomer to the Forum

My wife was diagnosed with PD in February 2020 in her early sixties. Biggest impact is to lower body mobility and the current use of Co-Beneldopa appears to have fixed upper body issues. WWP works very hard at daily exercises and various studying to keep an active brain.
I’m in my mid sixties and, touch wood, so far fit and healthy.
I have joined the forum to try and learn more about how PD may impact our lives in the future and how we might fight against the progression.
I’m also interested in learning more about the medications, treatments and research.

Hi @PWPilot,

A heartfelt welcome to the forum. I’m sorry to hear about your wife’s diagnosis and mobility difficulties, and I can assure you that you’ve come to the right place for advice and feedback.

We have a dedicated section on our website on equipment that could help one get around that you might find interesting: https://www.parkinsons.org.uk/information-and-support/equipment-help-you-get-around We also have a free and confidential helpline you can call for advice and support on 0808 800 0303.

The forum has an amazing and engaging community so I’m sure other members will chime in to share their personal experiences.

Best wishes,
Nikos
Forum Moderation Team

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This forum thing is far too complicated.

My name is Tony, I have had ME/CFS since 1987, I now suspect I was misdiagnosed because I never recovered from the ME/CFS. I have lived in Spain since 2006 and seen a neurologist on occasions to keep my medication going. In December of 2019 I was diagnosed with Parkinsons and started taking the pills. I am 80 years of age and walking is a chore. Falling over is easy. I seem to be of late holding my own but getting to see an ologist here is very difficult. I am waiting to see Neurologist, Urologist & Cardiologist. (think I have spelt them right). That is a brief, very brief introduction.

Hello Tony,

Welcome to our community forum. You will get to know our lovely group over time, but to start out we wanted to be sure you are aware of the primary resources we provide.

First of all, do check out our website at Parkinsons.org.uk. This is an excellent way to find answers to your questions on your own time, using the simple search function. The site is kept up to date with news, research, and it includes an archive of forum discussions by topic.

We also have a free and confidential helpline, on 0808 800 0303, if you’d prefer to speak with someone directly. Our team of advisors are highly trained, immensely helpful, and as friendly as you could like.

We hope these resources can be of use as you get to know our lovely community.

With our warmest welcome,

Jason
Forum Moderator