MY OH was diagnosed at 47, they are now 66. Strangely, we had none of your concerns on diagnosis almost 20 years ago. Maybe it was a godsend that the internet was not so readily available to us then. Maybe ignorance was bliss!
Stop Googling, stop worrying, stop speculating on the maybes and speak to either your consultant/Parkinsons nurse or phone the PUK helpline to allay your fears. Meanwhile, there is a great deal of information on the PUK website and free leaflets on anything that may concern you right now, including Lewy Body dementia.
Nobody dies from Parkinsons, maybe they die from the complications that may arise in old age associated with Parkinsons but Parkinson does not kill you outright, despite the spurious reports in the press which I have always challenged when they say that so and so has died from Parkinsons.
We had young twin daughters when oh was diagnosed. They fully participated in all that they did.
20 years later I admit that our life is very different to what I imagined it would be at our age but we still enjoy most of what we used to,and look forward to doing even more, while we are able to and for as long as we are able to. It is most definitely NOT a death sentence, just life changing but that is after many years and even then everyone's Parkinsons progresses at a different rate.
hi, my heart goes out to you. I was diagnosed 8 years ago, I am 55 now. I was a worrier and i panicked that dementia would affect me as it had other family members. I am not saying for one minute that you should do this but I can only share my experience in the hope that it helps you.
My pd specialist at my first appointment told me that in his many years experience, those patients with pd faired better with a positive attitude and not using google. So I have found a physical therapist who works with people with neurological problems. She devises exercise programmes suited to me that help with keeping my joints from stiffening up and help my mood. I also found that mindfulness helps me live in the moment and not the future.
The people on this site help also. They bravely share their story's and their fears and you don't feel alone. As benji has said its not a death sentence, it is something you deal with every day, but you can also enjoy each day.
Hi little - you have had lots of good advice so I won't repeat it. I am old now and getting older. I was diagnosed at age 64 and am coming up to 71st year. The only thing I would stress is exercise. Exercise, exercise and then exercise some more. Exercise is widely thought to be the only thing that may slow the progress. I exercise compulsively and nothing much has changed for me. The changes I have noticed could be due to the fact that I am getting on in life. Anyway, I have kept a blog since 2011 in which I document my journey. You can find it at www.wpgchap.blogspot.ca. There a people all over the world who are experiencing the crushing news that they have PD. I have had 70,000 page views in that time. I try to tell my tale and things I have learned in a non-frightening, but informative, manner. You might find it interesting and hopefully it will reassure you that it's not so bad being a PWP. Good luck.
YOUR F orum name spells out your attitude to BLACKHEART yes its going th hange your lifr, of course how much it does so is up to you its 19 yrs in 1week I was given the decision after not much of a noisy spell with some bloke called MR,,I, HE LOOKS INSIDE YOUR HEAD and produces the " yeh or neih" so when Mr Is very noisy scanner which I can undestand being inserted,,oooh I love that word inserted, It sends extreme signals to parts of my brain which has so mething to do with my very sexy (sometimes ) wife Lorraine inserted oooh ill have to stop threre is another word that has the same effect and that word is I dont know if I should spell this as it has a immediate effect, oh you only live once or 9 if you are a cat, though ,back in god OLD Seventy 4 we had a fine cat called SIMON, ""YES YES I KNOW" but as in the sadly missed MR JOHNNY CASH SONG, JUST CALL ME SUE, IT MADE HIM TOUGHER QUICKER" and boy was he ia scrapper he matured into a truly gracefull feline and we began to worry when other Toms called him out every night in what became a war over territory , now you may wonder what the heck has this to do with anxiety well let me complete this tale and ( OH THAT WORD IS INSERTING BY THE WAY, OH OOH I am so sorry please excuse my unforgivable behavior "insr"" NO NO NO MORE sorry my dear friends I will distract using my cat, now as I SAID IT WAS mostly night time I was 24yrs old and woulld defend with avengence any unfairness unequality which I thought was well unfair orr unequal and so t was my friiends one long hot summer I began to pick up the sounds of interlopers heading inward, now I dont know how I do this and it happens to this day, but I can sense when im in for trouble though I HAD NO IDEA WHAT WAS ABOUT TO OCCUR, my Ex wife was wallkiing home from her shift at the Working Mens Club, about 1/2 a mile from our home and well I wont dwell on this as its upsetting, anyway as my very lovely wife was only 20yds from home two of the local low life grabbed her and, well you get the picture I remember I was watching BOB REDFORD, in my view one of his finest movies JERAMIA JOHNSON, when our MEGA MOGGY began to howl , the scene where Jeramia was fighting off multiple attacks by Native Kree and Cherokee young warriors bore more than a similar predicament to my young feline buddy , now at this thought he began to fly around our home, howling and screeching in a way he had never done before so against my dear x wifes instructions I set him free, I counted 6 opponents one he knocked A,,,,E OWER EL''''W with his momentum, he ran straight at another with a savagery only matched by the hunting skills of Lionesses on the savannah of Keyna and Serenghetti , but among all these howling screeching sounds which could currldle blood at 5 miles there was anothher,, more human sound,, now along the back garden of out home there was a six foot lap panel fence you know the type the woos is woven together and though my wife said she didnt want a gate fitted , well much as I do today really with WN2, I just ignored her and as I after about 3 months had Identified the other noise as FED FED HELP my brain finally kicked into gear now I MUST STOP HERE as belofd needs me back soon
, but Im B:uG::<<ed if I CAN remembe
Sorry about that but I would have timed out ,beloved wanted a screw or a long screw well NO CHANCE thought I , so she wheeled be down to the summer house where there are 3 shelves each shelf has 8 containers with screws by the thousand and the sizes written in large felt tip are clearly marked upon the sides, so she had her screw and returned to finish this tale. of unfolding violence I opened the gate just as these thugs gained the advantage so I wasted no time stamping down with MAX VENOM on one thugs nicely positioned hand, the sound of crunching fingers was immensely satisfying, but what happened next, and I swear I could not believe it this screaming banshee wrapped around the thug sitting astride my wife and began to kick the BARsteward, in the face with his back legs this had the effect of turning the brave young sex attacker into a screaming GET IT OFF GET IT OFF ,for a moment I was going to do just that but SIMON WENT UP A GEAR and as thug 1 tried in vain to remove him his bite went through flesh and dug into bone he was by then helpless and his brave companion was long gone though we knew him and eventually thug 1 was released from his attacker from helll with a bucket full of water, SIMON hated water, and he ran away when he released this nut case it was obvious his right eye was severely damaged and we subsequently found out he had been blinded in the right eye the ploice were called as the screams were heard by neighbours and we even had a polis visit us to ask to see our dangerous dog ," we dont have a dangerous dog", we have a CIWS,, or close in weapon systen; "OH WHATS ONE OF THEM" well when I said HEs a CAT, He just would not believe me and just as he was leaving the cat flap opened and in came the warrior covered in blood and bits of thug, and when he spotted the young polis, he arched his back and was ready to go again, so I BOOTED HIM UP THE BOTTTY into the kitchen, there was to be a investigation but two days later as I was setting off to work his body was lying on the front step shot through the right eye.
We became persecuted in our street our car tyres were knifed I was attacked in the club buddies dissapeared and as it got closer to the trial we had to be alert as abuse of some kind occurred every day,
They were connvicted and both got 5yrs and from that terrible event to this day I have suffered with anxiety, though PD has worsened it I fear parky more than any thug but it can be controlled with CBT cognitive behaviour therapy speak to your GP it certainly works for me so see if you can get a appointment remember SHY BAIRNS GET NOWT Take care FED