Hello PD Forum,
I’m Rosie & I have recently been diagnosed with Parkinson’s disease. I wasn’t expecting to start the new decade writing that sentence, I can tell you. But it is what it is and had I had a choice for the new year, I might have opted for a new car, a holiday or thinking big – peace on earth!
I’m 59 and I’m told that is about the average age to get PD, again I would perhaps on this occasion been happier to be above average! In truth it wasn’t the biggest surprise, I’ve had health wise. I have been aware of a tremor for approx. a year now and put off getting it checked out. Having confirmation at the Movement Disorder Clinic at The Royal Devon & Exeter hospital just before Christmas was still a shock. A great deal of my other symptoms now make sense, and that is weirdly comforting. Stiffness, feeling anxious, constipation & feeling slower in some of my actions , suddenly there is a reason, I have been feeling the way I do and ‘m probably not going mad.
I was diagnosed with bowel cancer in late 2013 and had both chemotherapy & radiotherapy before two lots of surgery in 2014 & 2015. The first was to remove the tumour, approx 26cm of my bowel & give me a colostomy (to allow the site of the tumour to heal). The second operation was to reverse the colostomy. I’m adding the extra detail here so you get the idea that some of my current symptoms could easily have been a result of my bowel cancer. I also tell you this because I really thought I’d had my share! On a brighter note, I did get medically retired in 2015, and manage to live reasonably well on my civil service pension. So I don’t have all the financial worries I had first time around.
So here I am, new to this with a million & one questions… But for today they can wait. I have a supportive partner & family, some good friends, and a 2 year old Standard Poodle, that I adore. I enjoy gardening, walking & travel amongst other things. I love living in Devon where we have been since I retired & generally I’m a glass half full kinda girl…
Enough for now