Yesterday I attended a neurological outpatient appointment for what I thought was going to be a treatment plan for a trapped nerve. I attended alone and was not prepared for the clinical diagnosis of Parkinson’s. My view is obscured as I worked as a Macmillan nurse for some years early 2000 and my experience of people with PoD is colored by thi. I don’t have a treatment plan and I don’t have any other information . I am now waiting mri and dopamine check with review in 3 months I am only61. Struggling with what my future is going to be if I have one.
Hi @PeterStuart, thank you for your post and welcome to the Forum. We hope you enjoy being part of the community here.
We are sorry to hear of your diagnosis and understand how concerning a time this must be for you. Please know you are not alone and we are here to help. We have information on our website for people newly diagnosed with Parkinson’s, including a checklist on things to do and links to support that is available to you. You can find it here: Newly diagnosed with Parkinson's | Parkinson's UK
We also have a free, confidential helpline you can call on 0808 800 0303. You can speak with one of our specialists who can answer your questions and offer you the advice and guidance you need as you navigate this.
We hope this helps. Do reach out if there is anything we can do.
Parkinson’s UK Moderation Team 