Nightmares and hallucinations

:confused:
Hello All
Jennyb Lorna Mommah sooo ali j you all have my utmost sympathy ,diagnosed in 1999 age 49 and since that day I have tried every possible combination of Anti PD drugs, the excellent Professor who always tries to fit me in on clinic day , so he can be updated on what is a very Complex PD. All the Consultants and Nurse Specialists at North Tyneside Genral are first class and I know it frustrates them knowing that in my case at least the night terrors visions and hallucinations will simply have to be endured, however all is not lost my Parky Friends, you will have heard of CBT , a therapy which actually works for me when in the grip of even the worst Night Terror . Schooled in CBT by a perceptive Psychologist over a 5yr period, it didn't take 5 yr to learn the technique, only about a year before the penny dropped , and the whole idea was to combat severe depression which it did but more importantly it works when I dream, spooky aint it
It works like this, the dreams are so realistic I look upon them as a Parallel
Universe ,a place I go to when I sleep, No Im not bonkers,the creatures and horrible people I encounter have limited boundaries which they cannot breach I on the other hand can and do choose to wake up, yes I may be woken by my own scream but it is now more likely to be me taunting them rather than of fear I know they cannot follow ,I win every time and the more it happens the tougher I become in fact the worse dreams for me are the nice gentle ones, I am walking in the Cheviot Hills with my Wife and Daughters ,Son in Laws and all my Grandchildren not forgetting Betty and Jasper, Betty is a Choodle Jasper a fine5yr old boxer
the sun is warm and all is right with the world, then I wake, usually in pain and the realization that it was only a dream is very distressing, but Heh Ho onward and upward don't even look back they cannot follow, ever. Try and learn the trick It really does work astonishing though it may seem.
My drugs are Madopar 125mg 14per day,Tolcapone 3 1oomg plus a couple more which I need to combat Prostate Cancer, its a wonder I don't rattle.
I wish you all a peacefull restfull sleep, Kindest Regards fedexlike :grin:
I fell out of bed for the first time last night and thought I would check the forum to see if it was another deveopment in PD. It was helpful to hear of others experiences. Normally I sleep very well and often wake up in the same position as I go to sleep. I was aware in the dream of banging my head on something. It was only when I woke in the morning that I discovered a battered jigsaw box that I was going to give my granddaughter for christmas. Being a widow I don't have anyone to tell me what I actually get up to in the night!
Thank you forum
I throw myself out of bed often some distance.always accompanied by a very scary dream about falling. OH has given up trying to share a bed. fortunately we have another room. as soon as i fall i wake up and realise what i veryo done ,rub any sore bits of body and go soundly to sleep. neuro suggested clonazepam but will hold fire for a bit.
I also suffer from restless legs which stop me getting to sleep and once I'm there I then have REM behavioral disorder. Mrs eck has videos of me on her phone sitting up, eyes open and laughing. Mrs Eck sometimes watches The Chase and a couple of times I shout out the answers in between snores (I have narrow nasal passages).

In dreams I have fought in World War 2, however instead of Swastikas, the opposing soldiers wore Borussia Mönchengladbach badges(??).

I have also split my head open when trying to escape from a ski lift that was heading over the edge of a mountain. This all leaves me pretty exausted.

I saw a series of BBC documentaries about sleeping disorders which showed a chap with PD who had REM sleep disorder. It explained that the part of the brain which disables your body, so you dont act out dreams, doesn't get the message that you are sleeping. Clomazepam is the very thing for switching it on, and you off.

I had to experiment with the doze (geddit) but it does work. Just watch out regards driving etc. Initial doses left me dozy all day (Mrs Eck didn't notice any difference, dampt cheek and impertinence of the woman).

I have just started Clonazepam 500mcg… Prior to that I was taking 3.75 Zopiclone and 10 mg of Amitriptyline which I stopped cold turkey last night in favour of the Clonazepam. I had terrible nightmares and was shaking worse than ever, woke at 6am for about the 5th time in a full blown panic attack… Slept for about another hour and got up just after 8am… I showered and started to feel much better, however I am concerned about the nights and wondered if anyone else has had problems switching from these meds? I have Parkinson’s and am 75…Live on my own too… scary… My GP is only available by phone on Thursdays so I would appreciate any helpful experienced comments… Thanks Roz

I had 3 spooky ghost dreams last night. I woke from each dream before they became terrifying. I hope it’s not the start of a new trend. I have previously had dreams which are a bit scary but not one after another like last night