I have fallen out of bed (super king size bed) three times in the last month and have again started seeing people breaking into the house, standing over my bed or walking along the passage. I have started attacking my husband and verbaly abusing him. This first happened a few years ago and was controlled by increasing the amytriptilene to 30mg per night - I had been on 10mgsince diagnosis in 2004 to help with bladder control and muscle ache. I reduced the amytrip to 20mg about a year ago. PD Specialist suggested i increase to 30mg again or else take a sleeping tablet. I don't want to go down the sleeping tablet route. ANy suggestions welcome.
Sinemet 62.5 - 3 first thing then 2 four times a day (last dose at 8.00pm)
AMytrip 30mg - at night
Citalopram 10mg - am
Lanzoprazole at night.
Hi Jenny b,
My sympathy to you. It's awful when you're frightened to go to sleep.
I've been having night terrors for a few months , and have finally done something about it.
I was reluctant to add another drug, but in the end had no choice really. My Parkinson's specialist prescribed Clonazepam , just half a tablet, 0.25 micrograms. at bedtime.
I've been sleeping fine so far, no dreams or expeditions in the night.
Also, i don't feel sleepy at all in the morning, just rested.
I don't know how this affects the other meds. you take, your Neurologist will advise.
All the best
I have been having night terrors as well and like Lorna i have been prescribed Clonepam i have not tried it yet due to other problems, but the consultant recommended it as i am on so many meds and he thinks this is the best one for Parkinson's sufferers but check with yours also recently i came of citalopram as it caused muscle and joint pains in the night and they have now stopped.
Domperidome x 3 daily Rasigiline 1mgs daily Simenet Plus 2 tabs x 5 x daily primiprixol 0.5mgs daily Sinemet controlled release at night madopar up to 6 a day gabapentine x 3 daily for nerve pain paracetamol 2 4 x daily and lanzoprazol daily for my stomach. Hope you resolve the night problems (my husband swears i am not asleep when i bash him ??!!) what do you think Tee Hee
sorry spelt clonazepam wrong were is my brain to day ??
Thanks Lorna and Mommah
MY specialist did suggest Clonezepam but I was loathe to add something else to the cocktain and I don't want to cut out the Amytriptilene or I would never leave the loo . My sister is a fan of Tena lady pads but I'm not mentally ready for that yet. I will talk to my PD nurse, I have to do something because I am so exhausgted in the morning after an "active" night that I have no energy left for just living.
My hub says I am awake when I hit him too!!!! I certainly am after he has been swearing at me!
May I ask how old you are Jennyb I am 53yrs old and would like an active night (oh you mean active as in night mare's sorry I got excited and was going to ask what your secret is )( naughty) may be I should not have said that oh what the hell I have said it now.
my OH is having disturbed sleep too, thinking there's somebody in the bedroom at night, he's also very withdrawn at the minute,I'm going to phone our consultant tomorow to see if we could add Clonazepam.
It seems to work for you two.
thanks for the comments xx
hi i also have have dreams alot,some worse than others,i see the cat walking across the top of the bedroom door the other day,i still have bad dreams about my attack which happined few weeks back now,but i guess that still normal,hope they fade.i have dreams about my child hood alot.and then it can be a man chasing me down a dark aly and there is no end to the aly,but i always wake before he catches me,this dream has been a regular one with me for along time,i dont understand how some dreams can return to you differnt nites of the week.
I'm 63 AND HUSBAND IS 71 - he's awake when I;m asleep and I'm awake when he's snoring so your version of "active Night" is more of a NO-GO than a GO-GO!!!!!
I think the waking dreams are the worst thing as they trick your mind into believing they are true. I hope you soon manage to find some release from reliving your horrendous attack.
PS SLept like a log last night so maybe I should try staying awake alternate nights just to sleep well the next night!!
thanks jenny for your kindness x
Hi,I am a newbie to the PD 'Club' and yes i did have a disturbed time @ nights on the way to where i am, but thankfully I seem to have stabilised. (for the time being).
what gives me the shivers is all the meds you guys are on ! surely they interact to some extent, it look like the DR's cannot find a cure and are meely trying out layer on layer of 'cures' for your various symptoms?
Welcome to the club.
You're right, no 'cure' as yet, but many manage a good quality of life with the aid of our 'chemical helpers'.
Main thing to remember, we all are having different experiences and some symptoms which trouble others, you may never get a sniff off.
This site is very good to come to when you come across things you are unsure of. There's always someone who generously shares their experience , and this is often a help.
My sleeplessness is often helped by the consumption of a jam sandwich , which I'm off to prepare now. My only dilemma being : should I choose Raspberry or Blackcurrant ?
All the best.
I can cope with most of the symptoms of PD and have now got a good balance of meds which give me a useful life. But I cannot cope with delusions, weird dreams and hallucinations which leave me drained the next day. I am scared of adding another med to the mix in case it uspset the balance I have achieved so I am torn between a rock and a hard place.
I think I will have to take this to my PD nurse for discussion. Everyone is different and has different needs but it is so useful to talk to others going through similar experiences so that we can share what works and doesn't work for one person but might for another.
This is where the forum is so helpful. We can benefit from other's experiences. It 's unusual for me, but I was so desperate for 'normal' sleep , that I purposely did not read the accompanying literature before I took the first dose of Clonazepan.
I did however read it a few days later when I knew it was making a difference!
I was amazed to see that it's most commonly used with children, to control epilepsy.
Also, low doses of the drug are very effective in R.E.M.B.D. (Rapid eye movement behavioural disorder)
For more detailed notes see Wikopedia -- there's pages and pages !
As I said, I hurt my knee , on one of the night's activities and that's caused me more bother than the P's
So I'd say , don't hesitate, get advice , and Sleep. . . . . . . . . .
We have been going through the same experience . The last three night I stopped giving my husband his 10mg Amitriptyline . NO HALLUCINATIONS That is SO FAR will keep you informed .
Rasberry or strawberry, what a dilemma.
I have been in the habit of having a couple of biscuits before I go to bed in the belief that it helps me sleep. Recently I have had to knock that out because the dry biscuits affected my throat/swallowing and I was coughing a lot and taking throat sweets. I would go from raspberry everytime my favourite fruit.
I fell out of bed, smashed my chin on the bedside table and had the most horrendous black, blue and green bruise for weeks!! Family joke was that the dog had attacked me (the dog being our nickname for PD).
Amytriptilene is probably causing some of the dreams but I can't stop it as it controls my bladder at nighttime and stops the muscle cramps in my legs. I think I need to play around with my drug timings as well as having a chat with thePD nurse about my dreams. I'm very stressed at the moment as we are having an extension built on our bungalow and the constant noise, dust and other people makes it hard to relax so perhaps its not a good time at the moment to play with the drugs or add new ones.
Many thanks for all the support and suggsstions.
Hi JennyB The noise and stress would certainly make it worse . My husband didn't sleep as well last night . Told me he saw a man in a grey suit at the bottom of my bed He said Good morning to him and he replied the same then dissapeared .
Have you thought about getting a profile/hospital bed . I say profile because apart from raising the head / foot of the bed you can also lower or raise the bed Much easier to get into and when lowered not as far to fall lol That is if you don'y use the side rails
I was going to buy one ourselves but was not sure how much help it would be .
We had already indtalled a stairlift , money well spent, and a walk in shower .
We consider ourselves very lucky to have been given one on long term loan through our district nurses . It is a tremendous help to us .. They come with side rails .
Not the prettiests beds but I have put a single bed in the same room for myself . We both get a less worrying night .
Iim on alot of meds that make me drowsy in the day but I'm more alert after ten pm and awake till four am.so I get 1 or 2 hours sleep a night.any ideas what' I could do.thanks.john