I been diagnosed with PD for 15 years. In the last few months my condition has rapidly deteriorated and i need help and professional advice… I now discover that the Parkinson’s nurse service has been wthdrawn by the NHS along with the specialist neuro physios and OTs. So I turned to the PUK website for info on local support - zllch. There are no support services in this area for PD patients and no input from PUK. A quick search on the Alzheimer’s site revealed pages of information about support for people living with Alzheimer’s. It’s the same old story - whilst Alzheimer’s, cancer charities, the British Heart Foundation relentlessly stick their heads up on behalf of their members - running very effective national media campaigns raising awareness as just one example - PUK remains cosily below the parapet, virtually invisible in the national consciousness. I have a ‘forgotten’ illness.
I suggest PUk changes tts slogan from the laugaable ‘You’re not alone’ to ‘You’re on your own chaps - we’re not interested’ - at least it’s honest. .