I have had my Sinemet increased to 25/110 3 per day and to be seen again in 3 months. I am still having cramp in the hands and feet but this has reduced, dribble/swallow the wrong way and lots of internal tremors. The internal feeling is really odd, a little bit like having too much caffeine. When sitting if I move my hand upwards all my arm from the elbow down shakes and both hands seem to move in stages as if something is being forced against them. Both shoulders feel stiff and ache. Sorry, one other thing, I get hot burning sensations like a poker is being pushed into my back just under the shoulder blade. Have you had this?
My neurologist thinks it is muscle dystonia caused by not producing enough dopamine and has increased the sinemet. Not sure about this due to all the other things going on but what do I know? Didn't seem to have much time during the last meeting and it was very frustrating trying to get answers.
I have had the mri, eeg, emg, lp, blood tests, CT and full mot all ok over the past year. Originally, my GP thought suspected possible MS due to electric shocks and sensations but these have almost gone since being on the sinemet.
Can you have PD without showing visible tremor? Neurologist said it cannot be PD due to lack of visible tremor and the why I look.
Do you think I should for for a second opinion ? I don't want to upset my original neurologist but feel there is more going on. Many thanks.