Not diagnosed


#1
Hello,
Great website and thanks in advance.
You go with the flow with the hostpital appointment and I should have asked more questions at the time. :rolling_eyes:This was a few weeks ago.
My neurologist has recommended Sinemet. She mentioned a possible lack of dopamine and wanted me to start on Sinemet three times a day.
This was unexpected as Parkinson's wasn't mentioned but when I researched Sinemet everything relates to the treatment of Parkinson's disease. Hmm.
Do you think this is a test to see how I react to the treament before a possible diagnosis?
Many thanks

#2
Hi Spuddy,

It sounds a bit unusual, the diagnostic route usually involves ruling out other conditions and seeing what's left. My Neuro said at the start that I'd got a good selection of PD symptoms but not enough to make it a definite diagnosis. I had a selection of tests for a range of conditions including Thyroid issues and Wilsons disease.

What symptoms got you as far as the appointment with the Neuro?

Regards Tractorman.

#3
Over the last few years I have suffered from fatigue, cramp in the hands, calves and feet, lack of strength and internal vibrations in the muscles.

I have had the full MOT to date MRI, CT, EEG, EMG, Lumbar Puncture, ECG and various blood tests.

#4
does sound like the sinemet is more of a test rather than a treatment.

#5
Hi spuddy, they're certainly taking a "leave no stone unturned" approach.
By the look of that list it could be that they've already ruled out a selection nasties! Hang on in there! If the Sinemet delivers some positive changes for you that will go into the diagnostic decision maker too!

Regards Tractorman.

#6
Thanks tractorman and turnip. Together we could start a farm! :grin:

Did either of you have any pins and needles in the arm that felt like a blood pressure monitor squeezing ? Lasts for a short time then moves away.

#7
Hi Spuddy and welcome.

Have you looked up the symptoms for hypoparathyroidism? Yours sound similar. Have they tested for it? Just a thought, as a friend of mine has it.