Hi all. My dad has been diagnosed with PD in 2016 and has been ok, but deteriorated a lot during lockdown. Recently he’s had episodes of extreme confusion and we really haven’t been given any indication of what is ‘normal’ and what to do about it. He is so mean to my mum when he is confused and he doesn’t mean to be, but he just isn’t rational and forgets words and gets very angry and confused which I understand but we’ve been given no indication of how to help him. He was in hospital for a bit and then came home with no longer term plan.
The last time mum called the Parkinson’s nurse she basically said she couldn’t help with anything and we would have to ask his doctor anything at the next review… six months away. We still don’t know what the nurses are ‘for’.
Just feeling a bit adrift and that all the advice leaflets say is ‘talk to your GP and Parkinson’s nurse’ but they don’t help at all