I’ve been lurking on the forum since my diagnosis in 2017 but haven’t said hi. I’m a 43yo woman, an artist as my profession and I have two teen daughters.
For me getting diagnosed was more a ‘ah-ha!’ moment. It explained the strange symptoms I’d been having for some years. I’m not very fond of GP’s so didn’t chase anything up until I fell and had a very bad break that needed a specialist to look at who then felt there was something dodgy about my tremors, gait and general well-being. He sent me to harass the GP to get me a neuro appointment…and the rest as the say is history.
As I’m YOPD I haven’t started medication, I want to start when I really can’t function effectively, currently I manage ok. I’m also really interested in the new research…if there is a good time to get this disease perhaps now has the most hope for some break through.
On the whole it’s the fatigue, tremors (they make my job very hard) and the general slowness that I find challenging. I’m very fortunate to have a supportive family, and flexible lifestyle to adapt to these symptoms.
In my reading of many of your stories on here I can see what a supportive community you are! Thanks for sharing!