Hi. Sorry, this is going to be a long one to get on here all the symptoms and history. I’ll try and make it as concise as possible.
As the title says, I’ve not been diagnosed yet but the suggestion of Parkinsons has been made by my neurophysiologist. However, I’m struggling as although he suggested it and kept asking me if I have family history he seemed to dwell on the fact that I’m only 30 and have no family history. When I spoke to a Parkinsons UK nurse for reassurance, she said this was a bit of a red herring in that research is finding that those are not necessarily factors in Parkinsons diagnosis. Because of covid my appointment with neuro was over the phone and he hasn’t seen anything for himself, I was seen by his colleague first who basically told me he had absolutely no idea but would ensure they found the cause of my issues. The second neurophysiologist said as he didn’t see me in person he obviously couldn’t diagnose it but he at this time is going to say its likely functional tremor. He gave me exercises to do, namely squeezing something in the left side at different speeds and see what effect it has on the affected side (so far it has had no effect at all)
Since I was in my teens I have had migraines which are exacerbated by anaemia which is caused by menorrhagia. In the last 3-4 years those have lessened however I have developed sight problems. Namely spots and wiggly lines in my vision as well as my vision jumping and wobbling on occasion. I have tinnitus and dizziness and lose balance. All of this has been put down to vestibular migraine.
I have had stomach issues diagnosed as IBS since I was about 12.
Then over the past year or two, I started to develop a tremor in my neck and on my right hand which became increasingly more obvious and more often. Recently I have noticed my muscles twitching and tremoring in all of my right hand side. This is what prompted me to ask for a neuro referral.
Since my appointments with the neurophysiologist I have noticed not only the tremor but stiffness in my right leg and arm, sometimes my foot drags/sticks on the floor and sometimes I struggle with my hands and they suddenly grip or let go of what I’m holding, meaning I drop things a lot. The past few weeks/months I seem to have controlled the tremor somewhat however this has caused incredible pain in my right shoulder and my neck-(assuming I’m somehow transferring the movement to a small area?) and when I massage/relax the area the tremor comes back with a vengeance.
I’m looking for advice of things to watch out for, red flags/signs and symptoms I might not have thought of. Things to mention and ask the neuro when I see him (in November). If you would be so kind as to help me out in any way, I would be greatful.