Oak at Hark


#1

Hi all,

Let's Face it!

I've been diagnosed with PD since Early 2011. I still have good cognitive skills and try to keep active mentally and physically. I do cryptic crosswords, write short story's. I also write lousy poetry. The main problems I've had  are, akynesia (freezing), dyskinesia, muscle pull and periods of switch-off). I take 187.5 mg of Madopar a day plus a Madopar CR at night and a 24 hour patch (Rotigotine). I have been active and fit for most my life, but do have two replacement knees (the curse of the marathon runners). I've been managing pretty well until about  early-November when I started getting severe muscle pull in my face, particularly around the mouth. It' a horrible sensation and is affecting me more than anything before. At about the time it started I was under a quite a bit of stress, due a dodgy purchase. This may be coincidence.

Has anyone out there had this problem? Can anyone advise on non-medicinal treatment? It' spoiling my sleep and that's something I've never had trouble with.

Thanks.


#2

Hi again,

I Should have said 187.5 mg of Madopar 4 times a day.

 


#3

Hi, Yes, Parkinson's symptoms are certainly made worse by stress. This needs to be dealt with before you consider changing or increasing your medication. I find that exercise helps. How mobile are you? A 20 minute walk, if you can manage it, will get the circulation going.

   Don't give up with the poetry. The English language is a wonderful tool for relieving stress. Try memorising one or two short poems. Above all try to keep an optimistic and cheerful frame of mind


#4

Hello Christo,

Thanks for your sensitive reply.

I do tend get stressed up (over excited). And this has been worse since Parky's. Also I lost my dear twin brother to a massive stroke 6 months ago.

Me and my wife walk at least every other day. At least a mile. I'm not too bad when I get cranked up, Stopping and starting is the problem.

My sister and I write 500 word short story's by sending each other pictures from papers or magazines. She has had PD for 14 years. I think one tends to be more critical of poetry than of prose.

Back to PD - this facial muscle pull is really horrible.

Regards

 

 


#5

Saw a new post had been added today but can't see it...pressed last post but only got Dec 17.

Is it me?

GG


#6

Hi goldengirl,

I just needed to make a couple of edits to this thread - apologies for any confusion caused.  

Best wishes,

Joanne 

(Digital team)