i think some symptoms are subtle and creep up on you. on one of the rare occasions i cook anything, i cooked ready made Lasagne for me and my Grandfather (he's 94 lol).
my grandfather said ''that smells nice'', but he was in a different room too the food, i had too put my nose into the plate before i could smell it, it was then that i realised my sense of smell wasn't what it used too be, on another occasion i sat with a friend fishing on the way there i bought fish n chips, i like salt n vinegar on them, when i opened them it reeked and was awash with vinegar, i must of poured it on till my level of smell.
I wouldn't worry about the MRI too much its more of a step onto another step, when i had mine i expected it too be normal and it was almost apart from some degeneration in my spine.
Yeah Id not really noticed it until recently when someone had an air freshener on her desk and asked me if I liked the smell, even right close to it I couldnt smell it, and when someone heated up curry they said oh that smells nice and I couldnt smell that at all either. But Im sure sometimes I smell some things quite well, its weird. Ive also been finding counting hard lately, ive been having to count stuff at work and Ill suddenly forget what number is next! Im not worried about the MRI as such, just overall Im scared Ill have appointments with the neuro and tests etc and still not know for definate whats wrong. Im glad Ive got the scan though cos it will hopefully give the doc more information, fingers crossed!
Hi Suzynola7 and Sea angler, I have the opposite with sense of smell. It is so acute and some washing powders on people's clothes can make me feel quite ill. After my blood tests it was found that I had a ferritin deficiency and since taking my iron tablets I feel much better, not so many problems with my memory. I still don't know if the other symptoms, poor co-ordination, bradykinesia, subtle reduced right arm swing mean that I have PD.
I have had a CT scan today, had an MRI scan a few weeks ago.My hospital apt is 8th October so not long to wait now.
Hi suzy and flo
I've had trouble with counting and reading.
not that i do much counting now but i used too at work,
I noticed when i was looking at my pills i tried too count how many pills were in a row,and left in a row,as i looked along the the row of pills it gave me trouble in looking at each one and then counting it and recognising i'd counted it by the time i'd got too the end of the row of pills which wasn't many i couldn't remember how many i'd counted.
sometimes after i've taken a pill i have difficulty in remebering if i'd actually taken that pill? i may on occasion take a second pill, which i spose could be dangerous.
lots of text also gives me trouble reading, like a large news paper article or letter with lots of info on it, sadly it all seems too merge in one heap and i cant read it, sadly some of Feds long posts i cant read them either my brain just wont work.
i find also in situations were i have too interact with people talking i often find myself repeating the words i've just said or i have too ask person two or three times or more if its something like a instruction to do something.
Flo, i have been tested among many test's vitamin D deficient, which is strange because before i became ill i spent the majority of my time outdoors and by water, i often used too have a tan in january, i dont know if being deficient in thing is linked too PD??. my iron was a little low, but within 'ranges'.
Hi Sea angler, I believe my vitamin D is ok, I take calcium lactate which I can tolerate at a certain level. I have had quite a time with side effects from calcium tablets but I need them. I try to eat plenty of fish and look at vit D in foods. I have B12 injections as well.
I have had problems counting out the correct money and have often given up and handed over a note instead. And reading, I have been a lifelong bookworm but now I find it hard to keep reading. Also, if I get letters with a lot on them I find it hard to concentrate.
Following recipes is sometimes a problem, I read it over and over, and still do it wrong!!! Since taking the iron tablets my thinking is much clearer. flo
I will look into this vitamin thing the next time i go too the doctors too look into if im deficient still in anything??
I don't do much cooking now as i'm a danger too myself handling things but when i've tried i often find my mind wanders and things generally get burnt and i cant co ordinate what im sposed too be doing ~ cooking used too be my trade.
i have also noticed my appetite has gone, i used too love food but now it's just a chore that i must eat something because that's what we do as humans, i find with my dry mouth food just seems too stick around in my mouth and i'm chewing endlessly. conveying things like pea's on a fork is a game of its own and just makes the whole thing frustrating.
'sleep fits' if you mean biting my tongue then yep i do on occasion ~ i dont know if that's due too vivid dreaming ?.
I seem too have developing problems with food especially dry foods the most like bread,rice or dry meats, i nearly choked on rice, i don't know about feeling drunk that's a distant memory drinking any alcohol, but i do feel woosey and unsteady on my feet at times, looking down stairs unbalances me, i feel the urge that i might fall down them, that and uneven ground and slopes.
Oh dear, Suzy, not a nice time for you. Hope the pain eases, it can be exhausting. Best wishes, flo
Yes i am the same , some days i dont remember if i took my medication or not and the one day i took it again and felt a little off for a couple of hours a little disorientated and very shaky so now if i am not sure if i have taken them i just leave them till next dose , i got round this problem by setting alarms on my mobile and i also have a app which speaks out what medication i need to take at that time so no more accidental overdosing thankfully
Hi shelly65, my husband has PD and has the same problem with medication. He uses the alarm on his mobile and he is very interested in your app that speaks. Any info please. flo
That App seems a excellent idea Shelly.
agility then I DROP DWN A
Hello Suzy, I am sad that such a beautiful young Lady. as you are, should be strick by this pig of a disease also I sympathise with you Re - your pains and useless legs, I am having the same trouble now. these changes happen so quickly, one day you are running 98% next55% and I will run at this level for a week or two becoming accustomed to the lower level of mobility and loss of both mental and phyisical agility I expected the onset of contiuous aggressive pains and prepared myself but no way did I think the severity of this new tool in parkys armoury would end up with 99% unable to move any joint without great discomfort, , as I mentioned I will run at this retarded level for a few weeks just sufficent for me to adjust and through a combination of ( parrots eat them all ), a little joke there, its Paracetamol really , and bad tempered stubborn resistance and geting stuck in, I will overcome parkys pathetic attempt to permanently cripple old fed , now this all out war of attrition is constant Suzy and I am weakening, but the difference now is the changes are noticeable every week now, it used to be years, then months now weeks, and even in the most savage of BLACKHEARTS haed to haed, thats no a spilling mystek Sue its head normally in english, but haed in geordie its days or hours, it is terrifying Suzy, so as I say I do understand, also I have lost all sense of taste and smell I can pick up salt and and sweet but the more refined subtle elements of taste are long gone its old sods law again Suzy, just when the long lost passionate feelings seemed to be returning I cannot move for pain, life can be cruel at times, incidentally how do you think of, well er older people being passionate, I know some youngsters find it disgusting that folks in their late sixties should still feel sexy in fact I fear Hypersexuality is now a possibility in both myself and my Lady,this would normally be fun but its causing lots of problems making what should be exciting and loving into a world of pain
Well I am off to read the paper in the summerhouse its lovely here in Northumberland so I like to take in the last few sunny days of the year BYE FOR NOW
- Hello Suzy I have been practicing on my lady, no not that, i HAVE BEEN PRACTising the North American Chinook, rED INDIAN, Body massage techniques ,and have become a master or I WOULD GO AS FARas Grand Master,and should be awarded some kind of award, the award would be in recognition of my amazing ability to ease the suffering of fellow Forumers, and having read of the pain you are going through I am at your service my Lady and the ceaseless struggle to make someones life easier would be my goal, both my dear lovely velociraptor (my pet word for my angel), It was going to be PITBULLHTCIB, BUT UPON reflection velociraptor fits the bill, as I WAS saying my lady has severe pains ,they began when she fell while out walking I TOLD HER TO REPORT the uneven council NOT maintained foot path but she wont, so I DEVELOPED these skills to ease her pain,while at the same time I am like a kid in a library ( i was a vert bright child, I dont know why my brother used to polish me wirh floor wax only he can tell) or more to the point a BULL IN A TEA CUP, no thats not right either, but any way I LEARN MORE EACHday and have the MASSAGE SESSIONS DOWN TO 4HRS NOW do you think thats too long,so if you happen to be in Northumberland look me up,and we can compare pain and that offer applies to all my friends, good eh amazing what can be learned on the net
SWEET DREAMS SUZY AND MAY YOU BE FREE OF PAINS VERY SOON
FED this is me and my bro he always asks how you are