Best Wishes BB
Thinking of you xx
hi bb
the research explains alot while your be in longer on the 13th march back in for me 2 days bristol hospital 5 yr assessment for dbs . WOW five years just think of it making you get some of your life back & try not to worry about opperation sunshine great summer
Thankyou much appreciate xx
HI BB - HOPE IT ALL GOES WELL FOR YOU, AND THANK YOU FOR YOUR HELP IN RESEARCHING RESULTS AND ALL THAT GOES WITH HAVING DBS. AND ALL THAT YOU HAVE DONE IN HELPING RESEARCH PARKINSONS DISEASE WITH BRAVERY.
HI GUS - HOPE YOUR ASSESSMENT GOES WELL, AND THAT YOU NOW HAVE A BETTER QUALITY OF LIFE AFTER THE DBS!
Sheila x
thanks sheila
All the best BB
S
BB, will be thinking about you. Hope it all goes well for you and here's to better days ahead eh. Xx
Thanks all of you i really do appreciate your support throughout this whole process.
Take care brothers and sisters xx
Hi brothers and sisters in arms.
The film as stated in this post is going to be aired at the Royal Albert Hall for the Symfunny event on april 19th after that I will upload the link to here. I watched it whilst I was in hospital recovering from my DBS op and even though it was the worst attack I have every had. That was then this is now post DBS the future looks bright again.
BB xx
Hello BB, glad you're through the DBS, I know you will still have a long way to go, all the best and will look forward to the film. Better still I would have loved to be at Symfunny and see it there!
Sheila xx
Hello all. Hope you are all able to keep. " doing your thing".
Many congratulations to BB on what I consider to be a new life for you.
As you know, I didn' t pass the tests but I don' know if I could have coped with the whole procedure in reality.
I've been going down the Duodopa road and am waiting to go into hospital to test whether this drug will suit me. If it does, I think things will happen quite quickly.
Please keep in touch everyone. Your advice and sympathetic views are all helping to keep me going.
love
Casie x
Will do hun I really hope it works for you.
BB XXX
hope it works for you casie ,sure it will gus
Update on post entitled DBS
BB xxx
Hello BB, my name is Prof. it is not very original, but it was all I could think of because I am a Professor of Particle Physics. You are a very brave lady and I admire your attitude regarding educating the public.
I have been an epileptic since I was two years old, I am now 69 years old, living with the stigma of being an epileptic was worse than living with the seizures. I was diagnosed with PD four years ago and find that once again the stigma is worse than the illness. Those of us who suffer from PD are well aware of the fact that once our medication kicks in we are quite normal people.
I have a son and a daughter who both live in England and because of the PD they no longer speak to me. My daughter actually came to Thailand, where I live with my wonderful wife, and saw the state I get into when the medication wears off and showed me no empathy what so ever. My father who lives in England, never phones me. My father looks upon anybody who has an incurable illness as a weak person who should be put down like an animal. My son also takes the same attitude, he has absolutely no time for people who are over 65 years of age.
From my experience the public do not want to know about such things as PD, Alzheimer's, or any of the illnesses that are at present incurable. They either bury their head in the sand and pretend that it does not exist, or when they are faced with it because it is somebody close to them, they cut that person out of their life, My wife did not believe me when I told her what my family were like 20 years ago, when we got married, and came to England to live. She does not say much because she knows that the subject upsets me, but I know that she is disgusted with all of them. Her daughter from her first marriage shows me so much respect and love that I find it embarrassing when my children treat me so badly.
I wish you the best of luck with your effort at educating the public BB.
May God bless, protect and help you always. You are an ANGEL.
Thank you so much Prof I am glad you found your good lady wife considering your very difficult medical issues she must be quite a lady. Since this off state post the film shot was played in front of 4000 people at the Royal Albert Hall where it helped raise over £140k so pride does kick in with me knowing the impact my film had. Now I am 4 months post Dbs surgery with advanced pd stage 4 but my dbs is working so well i have my life back thankfully. Its a sad state of affairs when those in your life whom should be your rocks are so ignorant they just dismiss what your going through but i am a great believer in Karma. It always comes back to bite on the but those that deserve it one way or another.
My very best to you and your good lady ad than you for your very lovely kind words, much love to both of you BB XX
RIGHT ILL STARRT AGAIN AFTR A ALMOST COMPPLETE POST F????????????????? VAPOURISED,, I WAS EXP;AINING WHAT HAPPPENS WHEN I ONY HAVE .1 OF 1% POWER RESERVES LEFT USUALLY CAUASED BY BELOVED CHANGING THE PUMP ON THE Ddopa and forgettin to activate the pump , this causes a massive shut down within 10 . 15 mins and all I can move are my eyelids and my little fingers, so its esential the device is under obs 25/12 YES I NEVER WAS GOOD AT MATHS,, then I read your posts wot yu rit on this forum, and realise that you are a person of masive courage and concienshusnesssalso to actually forgo your meds to do the vid needs massive reserves of mental strength and agility, and you have that by the VOLVO/SCANIA 44TON BULK HAULER LIKE WOT EYE DROHVE LOAD, in fact I think PDF should strike a medal in recognition of wot yu dun 4 us young kind person, it realy does take some bottle and I ADMIRE YOU GREATLY FOR THAT,
YOUR GEORDIE PAL ALWAYS FED4
Thank you Fed much appreciated.
BB xx
Hi BB,
Is there a link to the Royal Albert Hall event and your video please?
As different as we are, echo Feds response and hope with your guts and the love of a good man you still doing ok. x