My husband, in his early 50’s was diagnosed about 6 months ago although looking back he’s clearly been suffering from symptoms for a number of years. We have kids ranging ing from teenagers to early twenties. Oddly, it is our older kids who seem to be finding this hardest to deal with. They live away from home so don’t see dad for a couple of months or more at a time. It seems like every time they come home they see something that has got a little bit worse and it seems to hit them all over again.
Does anyone know of any support networks they could tap into? It seems that there is a real hole in the support available to young adults. I’d love someone to tell me there’s not