Ok, so now what?

Last September I was finally diagnosed with Parkinson’s. It was only when I discovered via an aged relative that my Grandfather had it and I told my specialist that a scan was ordered and Yup, Parkinson’s.

I’ve also got Polyneuropathy, an arthritic spine, asthma, ischaemia heart disease and sometimes my nose itches… Sorry listing everything out makes me cringe.

Today has been a light-headed, dizzy day with a touch of nausea. All I want to do is sleep. There are some questions I keep asking myself. Is Parkinson’s hereditary? Does long term use of SSRI’S trigger it? Is a life time of depression and anhedonia a precursor? The whole shebang is so confusing.

Sorry, I’ve wittered on a bit.

Hi SimonP,

Sorry to hear about your diagnosis. It’s normal to have lots of questions at a time like this, and it may be worth taking a look at our website for some of the answers you’re looking for: https://www.parkinsons.org.uk/information-and-support/newly-diagnosed-parkinsons

You can also call our Helpline, where you’ll find information, expert advice and support on many subjects relating to your diagnosis. You can call them FREE on 0808 800 0303, Monday-Friday 9am-7pm, and Saturday 10am-2pm.

Hope this helps.

Best wishes,

Moderation team

1 Like

Hello Simon P, feel free to whitter on we all have a need to do that from time to time and especially when newly diagnosed and your world is in a bit of a spin. Take it one step at a time, one day at a time, take what information you need to answer your immediate concerns and don’t put pressure on yourself. I’m not going to pretend life is a laugh a minute, but it’s not all gloom and doom either; give yourself some time and you will probably find that like most of us, you will find a way of living with the PD. It may not be the life you saw for yourself but if you let it, life can still be worth living, the laughs are still there - you might just need to look in different places or dig a little deeper to find them. Good luck and happy digging!!23