Oldmoanervirus -- a few thoughts

Given that so many of us are worried about a virus named after a 70s fizzy drink, here are a few random thoughts, good and bad.

Social distancing? What’s new? This is easier for us than for most people. Our kids are a long way away, doing their own doo-dah. Many days the phone doesn’t ring (or bleep). And when it does, it’s when you’re watching your favourite rubbish telly or getting an early night, or flapping about in the bath like a beached wha… er, lovely magical dolphin. If it wasn’t for the difficulty getting groceries without getting infected, distancing would be a doddle. Talking of which…

Hurrah for Morrisons’ lucky dip food boxes, which seem to be obtainable when few other supermarket delivery slots are. Mind you, we’ve yet to try one, though one is on order. We may change our mind once we’ve seen what’s inside… never a fan of poppyseed custard creams. But I’m too scared to go the shops. The last thing I want to do is catch something that will infect my partner. Talking of which…

Having witnessed my partner not being given medication on time, every time, in a dedicated neurological ward full of PD patients, what’s the chance of the drugs being dished out promptly in a hospital heaving with Covid-19 sufferers? How about getting a DBS battery recharged in there? Some hope. We’ve written a To Whom It May Concern letter explaining the treatment schedule, just in case, but, yunno, it ain’t gonna get read. And I won’t be allowed to dole out the drugs, that’ll be deemed too risky. But I’d be glad to; after all, if my partner suffers from it, even departs because of it, why would I want to avoid the virus myself? I’ve spent the best part of 20 years caring, sharing and loving, I don’t wanna stop now, sure as eggs is… unobtainable round here right now. Talking of which…

We tried to get deliveries from Sainsbury’s but could not. They sent an email telling us we weren’t known to be disabled, which might qualify us for home deliveries, but we could phone a number to talk it over, perhaps to register, but probably to discuss just how decrepit we are. But you can’t get through. Then, when we eventually did, a recorded voice told us the Government would decide whether we were too susceptible to collect our own shopping. Like they would know. So we’ve given up – it’s always a relief to just stop trying. Who knows – perhaps the Army will soon be on the streets delivering rations, hurrah. Have you eaten Army rations? Huwwwagh. If we are meant to avoid Covid-19 (I was a nuisance at age 19, so it figures a teenage virus would be big trouble), then surely someone has to ensure we don’t have to go out to the shops and catch it. It’s not been made easy for us, has it? Anyone agree?

Stay well, Parkinson’s people. As much as you can despite your chronic, desperately unfashionable and largely overlooked health condition. And avoid other people. They might be heaving a sigh of relief: at least they don’t have to see these crumbling, (modestly) old gits for a few months. Even longer, perhaps – can you really see this over by May Day, midsummer, August bank holiday? I can’t. But don’t take any notice of me. I’m suffering from oldmoanervirus.

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So true - take care. Jx

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Hello, thanks for your message and sharing what you’ve been going through.

I’m sorry to hear that you’re struggling at the moment for a variety of reasons. On food shopping, we know that many people are struggling to access online shopping deliveries from the supermarkets as they are overloaded with demand.

We can support you to find this sort of practical help - locally. Please call our helpline on 0808 800 0303. We have colleagues primed, ready and waiting to help you find the resources you need locally. And we’re improving our local knowledge and capacity on this every day.

We are also putting pressure on and trying to work with the supermarkets and government to improve the situation. It’s important that we continue to hear how the situation is impacting you, so we can clearly make our case to the government and supermarkets. To share your story or get involved, please email [email protected].

Best wishes,

Jess - The Parkinson’s UK moderation team

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Getting a supermarket delivery slot has become my special skill. Here is my method:

  1. Register with every supermarket chain which will deliver to your address.

  2. Check with each supermarket online each day (or preferably twice a day) for open slots.

  3. When a slot becomes available grab it.

  4. Order groceries to the minimum value or more (e.g. £40 for Sainsbury’s, £60 for Waitrose). It doesn’t matter what you order at this stage, champagne and caviar will be fine because you are going to amend the order later on.

  5. COMPLETE CHECKOUT. This is important because it secures you the slot.

  6. Amend the order, cancelling the caviar and the champagne (maybe) and adding the stuff you actually need at any time before the cut-off, which in most cases is 10 pm the day before delivery.

  7. As soon as you have got one order secured start looking for open slots for the next one.

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Thank you JessL and Jane_L. Unfortunately Jane, though your methods are entirely correct, we live in a town that is twinned with No Slots Available. I guess this is what you get when the supermarkets are left to feed the nation (as one proudly boasts) like it is business as usual. Panic buying takes place because people don’t know how else to take care of their families – this is how they usually do it, let’s just do more. And the panic was partly triggered by the Government itself: the comment “Many more families are going to lose loved ones” on 12 March was not just a self-fulfilling prophecy. It was also a declaration that the vulnerable could not or would not be cared for, so people decided to look after themselves in the best way they knew: shopping. The policy, or at least, the way it is put across, has apparently changed since, but the panicked shopping habits remain.

I don’t know who is grabbing the delivery slots in our area or how but the best I have managed is a click and collect which I snaffled at five past midnight. Worryingly, when I went to make the collection 10 days later, the person who handed me the groceries did not observe the 2 metre distancing rule and even handed me a pen to sign for the stuff. The poor young fella was not wearing a mask or gloves though I noticed he was sanitising his hands with gel when I arrived (maybe he didn’t like the look of me in a flimsy dust mask, and latex gloves that were drizzling talcum powder down my trousers and jacket – one of the biggest fashion fails I have ever been responsible for, and yes, I lived through the 70s and 80s).

Gotta go:Queue-It tells me I have a minute to wait to get onto Morrison’s website for no doubt another disappointment when it comes to delivery slots. STAY SAFE.

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Thank you Jackson. Take care too.

We ordered a Morrisons meat shop box for 35 quid well happy with it included a variety of shop items from Bacon to bread they even put a packet of jaffa cakes in they lasted al of 2 minutes :smile:well done Morrisons top-notch well recommended

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Could not have put it better myself. Stay safe!

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Yeah, having lived in ‘no slots available - keep checking our website’ for a serious amount of time, I’ve actually managed to get a home delivery slot for food. I have decided to book this for my 80+ year old parents who don’t live near me because they don’t have an online account and don’t qualify for any extra support so their need is greater than mine anyway I look at it, but I have also managed to get myself a click and collect booking from the local supermarket so I feel that I have actually achieved something useful today:-) Of course the downside of this is that I have been watching the websites relentlessly for the best part of the last 24-hours which has taken out any chance of sleeping, though in all honesty I don’t get much at the best of times and I’m awake worrying for most of the time at the moment (about everybody and everything), but I reckon I at least have a few days free from ‘food worry’ which has to be a good thing. On another point, there’s an interesting looking webinar this morning on the MJF website which I’ve also booked onto so this is looking like a positive day relatively speaking. This is just a waffly post really :-S but I’m trying to overcome my natural tendency towards moaning and looking on the bleak side of everything so I promised myself I wouuld post the next positive thing that happened:-) Hope you’ve managed to get some sort of help with food deliveries, it isn’t easy! Jx

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