I've found an information sheet on this website entitled "motor fluctuations in Parkinson's" ands it pretty much describes my symptoms. It also answers my question about freezing / on off effect, apparantly, as I suspected, they are not the same.
Regarding the pain, when I switch off I feel my lower back tighten up and the pain sort of radiates from there because it is so much effort to do anything or to move. I can't manage to get down on my knees to try to crawl, (I would try if I could). I just have to make constant efforts to keep things organised in such a way that I can get to what I want or need. Needless to say, it doesn't always work! I can just about manage to move short distances by holding on to whatever is available to prevent me falling. Some places in the house where there is nothing to hold on to ie across the middle of the living room I use my walking stick, although there are times when I can't manage those bits at all.
What usually happens is I take a dispersible tablet and lay on the couch for at least half an hour until it passes, but those tablets don't really work if I've recently had protein, ie it doesn't do much good taking one after I've had my dinner in the evening.
I have to arrange going out anywhere around my off spells. Its happened a few times when Ive been out in a restaurant in the evening and my husband/friends/relatives have had to help me out to the car (with me feeling most embarassed because onlookers, I'm sure, must think I'm drunk!)
Anyway, I'd better go and do other things now, sitting at this computer quite often has a bad effect on me!
Hope your having a reasonable day Lin, take care.