Regular use is made of the terms "on" and "off' to indicate how well a person diagnosed with PD is functioning at any moment in time. But just what does it mean to the individual?
In my own case 'off' means my right leg becomes heavy and weak, and from a sitting or lying position I struggle to raise it. Sometimes, but not always I drag my right leg when walking.
It also means my right arm becomes weak and my fingers stiffen and are difficult to move.
If I am sat in a deep armchair it means I struggle to stand up.
If I am in bed I struggle to turn over or get in/out of bed.
A complication is I also have Peripheral Neuopathy which can also be a cause of the above, so am I 'off' or am I having a PN moment?
'On' to me is when none of the above are affecting me.
I would be really interested to learn from other PD patients what 'off' and 'on' means to them.