I am seeing a Parkinson’s nurse for the first time in 2 weeks to discuss starting medication but I am pretty sure I have the above conditions. Does anyone else have both these and how are they treated?
Good morning Rob28 … I’m not sure as to whether your Parkinson’s nurse can / will
prescribe the Parkinson’s medication you need or whether it is done through a neurologist. I do not have a neurologist so my Parkinson’s nurse does prescribe the medication I take. First it was Madopar which gave me a bad reaction so I stopped it after 7 days. Then it was Ramipril which I stopped after 10 days. Then I was put on Sinemet which has worked. I started with a low dose for 7 days & then increased it to where I am now which is 2 pills 3 times a day.
I also suffer with neuropathy & arthritis in my knees & spine. So I can never be certain quite which is causing the mobility problems I have. I am certain it is not just Parkinson’s which is the easy answer.
I’m sure you will be prescribed one of the many options of Parkinson’s medication. This is done on a trial & error basis. You try a drug if it works great, if it doesn’t you try another drug or combination of drugs.
Do let us know how you get on.
Best of luck.
Steve2
Thanks Steve am just so worried about my blood pressure being all over the place. I feel awful at times but that could be stress and anxiety too. Looks like I may have arthritis issues too. Awful pain between my groin and hip and having an x ray after I see Parkinson’s nurse. They will be the ones who prescribe my medication. I had a private Neurologist for my first appointment only because of NHS waiting lists. I would still be waiting now. The trial and error for meds doesn’t sound like much fun, especially the “error” bit. Thanks.
Good afternoon Rob28 … I too have days where I get BP readings of 150/100 & 95/76 within an hour of each other. I am on BP medication that lowers my blood pressure as well as other medication for something else that also lowers my blood pressure even more. I have also had two bad A Fib incidents that is now being treated with additional medication.
If you worry too much you are obviously going to make things worse. So try not to worry.
Best wishes
Steve2
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Orthostatic hypotension is common in Parkinsons both from the illness and the medications. Getting up slowly and sitting if you feel faint is a good start. Drink plenty of fluids. If that doesn’t work try compression stockings (assuming you have no medical reason not wear them). There are medications that can help as well but they are tried after these simpler measures.
I have orthostatic hypotension and it’s a pain but I more or less manage without medications.
What do you mean by supine hypertension? If you have orthostatic hypotension your BP will be higher when you’re lying down than when standing. It kind of depends on high it is. BP will be variable depending on mood, activity, anxiety etc.
L-dopa will make you feel better and move better but won’t make the hypotension go away.
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