Hi! My 70-year-old mother has been diagnosed with Parkinson’s for a little under 10 years now. One big problem for several years now has been pain that manifests as tremors and the general response is spasms and pain deep in the rectum. It comes on occasionally in the afternoons, not in the mornings. The pain responds to Madopar or the maximum dose of painkillers and muscle relaxants. It seems to be related to an under- or overdose of dopamine, in any case a clear connection to the dosage of dopamine. The pain attack does not come every day and lasts a few hours. If she is so tired that can catch sleep in the middle of the pain attack , the attack has ended when she wakes up and does not continue after sleeping so there is something that the sleep relieves . The pain is comprehensive and for example there are sensations also in the arms, but the pain felt deep in the rectum is the most disturbing. The doctors did an endoscopy in this regard and repaired a small ulcer that was found, but the repair did not help this problem. Has anyone had a similar experience and has anything helped?
Hello Nikodemus, welcome to our community. Thank you for sharing your mother’s experience. It sounds like the pain is really difficult for her right now. We’re glad that the pain is responsive to medication but we’re sorry to hear it returns randomly.
We’d recommend reaching out to your mother’s GP, specialist or Parkinson’s nurse. We’re also here to help. Our confidential helpline is available for anyone who’s affected by Parkinson’s. You can call us for free on 0808 800 0303. Our trained advisers are on hand anytime between 9 am and 6 pm Monday to Friday, and 10 am to 1 pm on Saturdays.
Pain is a common symptom in Parkinson’s, affecting about 60% of people with the condition. We have information on the different types of pain and a range of ways to manage it on our website which you might find helpful too: Pain | Parkinson's UK.
Take care 
Parkinson’s UK Moderation Team