Hi my name is Tricia - I was first diagnosed with Dystonia 10 years ago - this has progressed to Parkinson's which is at stage 5 - I take Madopar - Sinemet - use Neupro patches and Buprenorphine patches - meds have helped with the shaking but now the pain is almost unbearable and the Bradykensia affects my breathing which is so scary - can anyone advise me on what further options are - I didn't realise that Parkinson's caused so much pain x
Hi Tricia,
Sorry to hear that your symptoms are so painful and scary. Have you considered talking to one of our Helpline advisers about this? They will be glad to talk through some options and you can call them on 0808 800 0303 from Monday-Friday: 9am-7pm and Saturday: 10am-2pm.
Best wishes,
Edwina
Moderation Team
Thank you for your reply - I will contact some-one for help on Monday - Tricia x
1 Like
Hi @Tricia3 I have exactly the same as you especially when I find my medication isnt working. I take an madopar desperible to help out kick in quicker