Hi chop chop sorry to hear you've been in so much pain . I have a lot of pain too and like yourself for many years . I was diagnosed sep . My right side is affected particularly my leg and arm/ shoulder . Certain movements can make me really wince . I was started on vitamin d as they thought it might be bone pain as my levels were low . Have yours been checked ? Also they thought I was under medicated . The pain in my leg is somewhat better than it was . I've been going to hydrotherapy weekly to try and strengthen this leg . Hopefully that will help . Have you had physio / hydrotherapy . I'm sure that's made a difference . I take ibuprofen and cocodamol 500/30 -gp said take 3 a day because of risk of constipation ! I do try and manage without them because they make me feel a bit sleepy .
Do you think your tablets may need increasing ? I work full time too . I take my tabs at about 630 so I am ok for work . I have been busy today and I'm typing this with other hand . I feel the busier I am the more dopamine gone . It seems really difficult trying to strike a balance between work / rest / exercise and staying on as low a dose as possible . Do you find that ?
I find a hot bath really helps - simple thing you've no doubt tried .
I have been referred for shoulder scan - problem was one of first symptoms but never actually had scan . I hope you feel better soon . Sorry I'm not much help but I sympathise as this pain can be really horrible .