I’m sorry to hear that you’ve been experiencing so much pain.
If your doctor has prescribed you medication for the pain and it has been ineffective, I would strongly recommend you go back to your doctor and consult with him/her on this.
We also have a section on the Parkinson’s website with useful contacts for dystonia, here that you may find helpful. Lastly, you can contact our helpline service on 0808 800 0303 and to speak to one of our trained advisers who can offer you more help and support on this.
Do keep us posted on this and all the best.