I was diagnosed with Parkinson's June 2014 that was changed to Lewy body dementia in 2015 I'm now 59.
The main trouble my oh and I have found is that all the support seems to be aimed at older sufferers Alzheimer's awareness groups help so it's worth looking into what support they can offer in your area,
My oh pushes me to do things all the time she will only help when it's obvious that I can't do something , she keeps me occupied all the time with tasks that stimulate my brain , we practice mindfulness and have found certain meditation music helps particularly the ones aimed at aiding rem sleep,utube is a good place to find these,
starting to go off now but will try and write some more later,
Live well. Cc.
Ps I live in the south of England
You are entitled to assessment of your needs as a carer. Depending on the County this will be done by Social Services or an organisation they have contracted to help carers. Although this may not result in concrete help it should give you access to a named person who has the information you need and can discuss your best options. But first do you have access to a specialist parkinsons nurse and/or PD UK Welfare Officer?. This willl take you straight to the section of this site where information on support is detailed: https://www.parkinsons.org.uk/local-support
I'm really sorry to hear that you still haven't found all the support you need. Have you tried giving our helpline a call? They may have some suggestions for young carers and, in any case, they are a great source of emotional support and practical help themselves. The number is 0808 800 0303 and lines are open Monday-Friday: 9am-7pm and Saturday: 10am-2pm
Don't just talk about making a POA. Do it now while your husband still has capacity and register it as well. It is useless unless registered.
We both made POA's, both types, a few years ago. If we had left it until now we may not have been able to get them for my husband.
I am sorry to read your troubles. I am 53 and have been given the same diagnosis as your OH last year. I am earlier with my symptoms although I am aware of a steady decline. My OH has taken my diagnosis quite badly, we have found a local support group who have been fabulous with her. The lady who is the point of contact has been a great help especially by email. We attended our fist meeting and were made to feel welcome. More importantly for me my OH feels that she has a support network outside of our immediate family.
I do wish you luck finding the support that your need.