I actually joined the online community in early July this year. My husband was diagnosed with Parkinsons Disease in November 2010 and Alzheimers Dementia in February 2011 at the age of 57 and thought all he had to do was take his tablets and it would all magically disappear, which of course was never going to happen. We have had a terrible 7/8 weeks where my husband went downhill rapidly. He was falling over, I had to seek ambulance assistance, his speech was becoming inaudible, he also became unable to wash, shower or dress himself and was also having problems holding cutlery and was putting his hands in his food and was totally unaware of this. The final straw came when he began urinating on the bathroom floor and one Sunday this happened 10 times. I could take no more and begged our local Council to fund 2 weeks respite care which they reluctantly agreed to do. We have also been able to change our Social Worker as there was a personality clash. The new one is really understanding. We also have a Community Psychiatric Nurse who has been amazing and my husband has been going to a mental health hospital day unit one day a week for the last 4 weeks and has four weeks left to go.
My husband has decided he wishes to remain in the care home as he knows I cannot give him the benefit of 24 hour care when and if he needs it. This has been a very difficult thing to come to terms with and the 'guilt monster' strikes me, usually when I go to bed!! I am having difficulty finding anyone who has a partner as young as my husband with the dual diagnosis. I also post on the Alzheimers Society online forum and so far have not found anyone in my position. Is there anyone here in my position who can help? Many thanks for taking the time to read my post.