Thank-you so much for your reply, I am sorry about husband. You will never know how important it is to me to hear from someone else who knows what I am dealing with. At last, someone who can identify with me, I really thought I was the only one!! I know what the eventual outcome will be but try to live for today, which is not easy as I am only 62 and see my friends enjoying life and making plans for the future and I know what my future is going to be. I also know what the eventual outcome will be and I am trying to make sure each visit to him is a happy one so that when the inevitable happens I know I did my best.
My situation is made sadder by the fact that my husbands older sister has early onset Alzheimers and has now had a brain scan as they suspect she has Lewys Body Dementia. His younger sister in America also has early onset Alzheimers (she is only 55). I am really concerned about my 29 year old daughter and hope that she isn't going to succumb to either Alzheimers or Parkinsons in the future and that this isn't familial Alzheimers!! She was offered a genetic test but decided for now not to have it done, a decision I fully support. I hope we can keep in touch.
Do you have a support network around you i.e. family/friends?