Parkinson's Awareness Week is 16-22 April


#1
Hi all,
There are only a few days to go now until Parkinson’s Awareness Week 2012 – it starts on Monday with the theme ‘Find a cure’. As you may have seen on our website and social media channels, and through our magazines, there’ll be a lot happening during the week and we need your support. Here’s a quick summary of just some of the things happening during the week.

Major new research study

We'll be launching a major new Parkinson's research study on Monday, the first day of Parkinson's Awareness Week. Find out more about this on Monday.

Share your story

We’ll be launching a new online feature for you to share your messages about what a cure for Parkinson’s would mean to you – people with Parkinson’s, carers and family members, health and social professionals, researchers and our staff and supporters can all take part to help us raise awareness of just how urgent it is to find a cure.

Events across the UK

We’ve been updating our online map of Parkinson’s Awareness Week regularly for the last couple of months. There are now nearly 200 events on our map, with new events still being added daily. Take a look at what’s happening in your area or add your own event.

Media coverage

We're working hard to achieve as much media coverage as we can during the week, to raise awareness of the urgent need to find a cure. We’re off to an early start with national media coverage leading up to the week, including items in The Independent, Prima magazine, Mature Times and the Daily Record in Scotland.

Find out more

For details of all and this and more, visit the Parkinson’s Awareness Week area of the website at http://www.parkinsons.org.uk/findacure

Throughout next week, we’ll be adding regular updates, news and opportunities to get involved – so keep an eye on the website and our social media channels.

Ways to get involved online

A few ways you can help spread the word now:

‘Like’ us on Facebook – share our messages and post your own http://www.facebook.com/parkinsonsuk

Follow us on Twitter – retweet, post your own tweets and use the hashtag #parkinsonscure http://www.twitter.com/parkinsonsuk

Add our ‘Find a cure’ stamp to your Twitter or Facebook profile images http://twb.ly/HcDuwA

Ezinda

#2
Hi,

I did my first tin collection today in my local Supermarket and raised the grand sum of £183.00......I've also contacted two local newspapers and they have agreed to cover my story for Parkies awareness in next weeks edition. Just have to wait and see how it turns out!

Best wishes to all fellow fundraisers:smile:

Diane

#3
well done drobb:smile::smile:i got me parkinsons awarness collections etc day end of the month ,i sort it out every year for last 4 years now,it all helps :wink:

#4
Hi all,
Parkinson's Awareness Week in launched today with an exciting research announcement! You can find out more here: http://www.parkinsons.org.uk/tracking

Be sure to check the website throughout the week for further updates and activities near you: http://www.parkinsons.org.uk/findacure

Cheers,
Ezinda

#5
What would a cure mean to you?

We're inviting a range of people affected by Parkinson's to share their stories to help raise awareness of the need to find a cure.

Visit the website, read stories from others and share your own at http://findacure.parkinsons.org.uk/

Ezinda

#6
Hi Drobb and ali j,
Thanks to you both for your fundraising. Drobb, I hope your first experience is one you'd like to repeat :-)

I was a cheerleader for the 61 runners for Parkinson's UK at the Brighton marathon this past weekend. It was such good fun, I will certainly be back next year. See the pics here: http://bit.ly/IrqvUw

Drobb, please do let us know if your story gets published. You may also want to contact our media team at pr(at)parkinsons.org.uk to find out if they can offer any support.

Ezinda

#7
Hi Ezinda,

Definately enjoyed the collection and will do again. My local area newspaper did run an article and the media team have been made aware.

Great pics of the Marathon runners but none of the cheerleaders!!!! I'll pop along next year with my camera and hunt you down!! :laughing:(i live along the coast near to Brighton).

Best wishes

Diane

#8
Ezinda - P.S just forwarded form to be considered for new research programme that you listed above :fearful:

Diane

#9
IVE ONLY JUST CHECKED ON THIS PARKINSONS UK WEBSITE OF WHICH I READ MONTHLY I GUESS AND APPARENTLY ITS PARKINSONS DISEASE AWARENESS WEEK FROM APRIL 16 - 22.............. WELL IVE SEEN OR HEARD NOTHING AT ALL ON RADIO, TV, INTERNET ETC...... SO MUCH FOR MAKING MORE PEOPLE AWARE OF MY ILLNESS, CURSE & NIGHTMARE PARKINSONS DISEASE.......THINK MYSELF AND FELLOW PARKINSONIANS ARE FIGHTING A VERY STEEP UPHILL BATTLE, SUCH IS LIFE !! *SIGHS*

Hugh aka welshbearuk

#10
Hugh,
I'm sorry you have not heard or seen any of the coverage but I can assure you it has been there. The chosen theme of Parkinson's Awareness Week this year is 'find a cure' The papers are full of coverage about the "tracking parkinson's" study which needs PWP who were dx under 50 or in last 3 years.

My friends and work colleagues all know that I have Parkinson's and they keep sending me newspaper cuttings and asking about it.

EF

#11
Hi Welshburek,

Here are a couple of links i was sent from my pd social manager. The first two are about the new research project mentioned above (see Ezinda's post) and the last describes Parkinsons in relation to how a steam train operates!


http://www.bbc.co.uk/iplayer/episode/b01g5yxq/Today_16_04_2012/

http://www.bbc.co.uk/programmes/b01g4swn

http://www.bbc.co.uk/news/health-16705791

Happy watching!

Diane

P.S Was told their was an article in the Sun & Telegraph this week also.

#12
Well it is over for another year.

I think this is a very important week and that the awareness project is for all of us to engage in. To my way of thinking if we were all to tell one person a day that you have Parkinson's then you are achieving the projects aim.

Alternatively if you are so inclined you can involve yourself in the official campaign or take on something yourself.

In the last seven days I approached the local paper having been asked to do so by our Chairperson. Result, a short article in the paper last Thursday.

I sent an email to the local Radio Station. Result, 20 minute interview publicising awareness week.

Two weeks ago I visited one of the local Sikh Temples. Invited to chat with one of the elders. Result, invited to run a stall at their Festival. Raised a small amount of money, met many beautiful people, got drenched just when it should have been starting, got fed much lovely grub and the three of us have been invited back again next year, God willing.

I know this does not suit everyone but it certainly took my mind of aches and pains even if I did spend a lot of the time in the loo!!:laughing:

#13
Dear Bogman,
You have my every admiration.
I intend to follow your advice and tell people that I have pd, rather than agree that I am somewhat under the weather, have maybe sprained my ankle etc etc. Might not be one /day though. I do not get to see that many people.
Keep up the brilliant work, and thank you

AB

#14
It ended yesterday? Drat, I wasn't Aware.

#15
well done ezinda for takin part in the ,marathon,and everyone else who competed:smile:and a huge well done to anyone else who took part in any fund raising during pd awareness week:smile:

#16
Puff Pant Puff Pech Wheeze ... I'm here ... already for awareness week ...

tap tap tap

Whats that zooty? It's finished! But don't worry you told everyone. I bet that got the message across!

#17
Hi all,
In the end, we had one of our most successful Parkinson's Awareness Weeks yet!

Not only did we have more record visits to our website and calls to our helpline, but over 1200 people have expressed their interest in participating in our groundbreaking Tracking Parkinson's study and we had more than 600 pieces of media coverage.

Read more about the week and let us know what activities you took part in on the Talk Parkinson's blog: http://talkparkinsons.blogspot.co.uk

There is also still a chance to participate in the Tracking Parkinson's study at http://www.parkinsons.org.uk/tracking

and to tell your story about what a cure would mean to you: http://findacure.parkinsons.org.uk

Thanks to everyone who got involved!