I went to a meeting with the Education Group Programme last year, and 'booked' in for Nov 2014 for another session. This was cancelled. but someone said when the new programme comes out we will let you know. Imagine my surprise when after waiting until February. Then contacting the Parkinson's Nurse to find the sessions began on 6/1/15, with another session 27/1/15, and yet another session 3/2/15. I noted the session on 27/1/15 was about 'Improving Sleep and managing fatigue'. Something I would've been interested in. Now I have lost the opportunity to go. Also this web site told me to change my 'status' to write on it. I e-mailed for help on this subject 26/1/15. To date no reply.
Is it worth bothering to try to keep in touch with my Parkinson's nurse, when clearly I am not communicated to by her or her office. Also is it worth asking for help on this forum, when clearly this is not forthcoming. To say I am surprised at the lack of communications is an understatement!