I was dismayed to read on the website that PD nurses can only see patients with a ‘definite’ diagnosis of PD and wonder exactly what that means? What about people with ‘probable’ and ‘possible’ diagnoses, which seem common-place, given the apparent reluctance of many neurologists to make a confirmed diagnosis?
We’ve had a pretty difficult time the past 2 years due to my OH’s motor and cognitive difficulties which his new, excellent neurologist told us are typical of PD. A recent DaT scan has apparently confirmed this, the side most affected by dopamine loss being contralateral to the side most affected by his motor difficulties. Yet the consultant’s letter to our GP reporting the scan result says he ‘may’ have PD. Does this mean he is outside the nurse’s remit?
Whilst I appreciate the consultant may be being cautious as the “correct” diagnosis could turn out to be something other such as MSA or PSP for example, it would leave people such as this out in the cold.
Has this been an issue in practice for any other forum members?