The other day I received an e-mail asking me how I felt when diagnosed with Parkinson's.Also what or how much should I tell my family and friends. After completing the form I sat and thought about what I had put,.I thought it needed more information on the form not just little boxes to tick.
I don't mind telling people that I have Parkinson's. I was diagnosed in 2010, and medication is a wonderful thing. What I have found when talking to friends/relatives is that what most of them know about Parkinson's is that having Parkinson's makes you shake. So what I do is not try and explained about symptoms but give them a leaflet and ask them to read it, I copied it out of a magazine, as when I was first told that I had Parkinson's I thought just as my friends did, even reading leaflets I still did not under stand then when I read the article everything became clear. The only thing I did that was wrong was look at a dvd with people who had got advanced Parkinson's so if you have just found out you have Parkinson's live each day and enjoy life don't let it get you down. What I don't like is when people call Parkinson's a disease to me it is not a disease as you can not catch it. This is only my opinion.
So to the survey form I think it needs revamping so you get a much better picture then people won't just think you are clumsy.