Southend (?) Manager Paul "Luggy" Sturrock made public in 2008 that he had PD. He was diagnosed in 2000 and says he probably had it for much longer than that (which we can all relate to).
The affable Scot said his specialist said he had a "bog-standard form of the illness".
What exactly does this mean? I know bog means toilet. Does it mean his specialist thinks he had a "mild" form of the illness. How would he reach this conclusion?
Well Done Luggy on your success over the past decade and Forza Southend!!
Now that has me puzzled Rico. O/h's PD nurse, having just read an A4 sheet of his history up to present day, courtesy of my efforts, looked at him and said. "Your'e just not classic PD, are you?"
I am Scottish and 'bog standard' basically means 'run of the mill' or a 'general' case ie his case is just like hundreds of others and nothing out of the ordinary which I think is a terrible and insulting thing to say to a person being diagnosed with Parkinsons
I was told by a consultant that I was "a classic case of Parkinson's" Sounds nicer doesn't it? But equally unhelpful
Bogs in Eire are large ares of soggy ground from wich peat turfs were dug to provide heat & light in the farms & cottages. Nowadays we have the electricity
Although I found the term "bog standard" useful to describe the fact that I am a pretty classic (much nicer word) case of older onset PD which I think I have for very many years and which at present has responded very straightforwardly to medication, I reserve all rights to its use and certainly would not like someone else who has not got the disease to use this word in reference to me I googled the meaning and all the definitions I found agree on its negative overtones......"
It seems to imply "no big deal" whereas you can have classic symptoms and not repond at all well to medication.
"Bog-standard is a well-known informal term, which originated in Britain; it means something ordinary or basic, but often in a dismissive or derogatory way."
Read more http://www.kgbanswers.co.uk/what-does-bog-standard-mean/20681845#ixzz1SC3SaBaG
Eileenpatricia. I always look forward to your posts You gave me some very helpful advice & a contact address for which I have so rudely not thanked you. May I do so now? Thank you
No such thing as standard PD. Symptoms can vary considerably between individuals.
i have to disagree a little - symptoms vary but there is still 'normal' pd as opposed to non-standard pd-isms such as msa and psp. also pd caused by poisoning could be atypical.
I did actually ask the consultant what she meant by "classic PD" She explained that her comment was based upon her observation of the physical signs she observed eg tremor, stooped posture, dragging of left leg, lack of facial expression.
My understanding is that symptoms are the more subjective aspects that a patient reports such as fatigue, nausea
The physician then makes a diagnosis based on signs & symptoms & medical examinations & tests.
I have to say that in my experience, a diagnosis may often be made on the basis of signs alone. Difficult with a condition like PD which has so many signs in common with other conditions (trapped nerve, benign essential tremor to name but a few) Doubly difficult given the fluctuating nature of PD
JC: Did the PD nurse diagnose the PD? Or was it via notes that also included dx by a specialist upon which she made her comment?
Our second neuro (the guy who actually spent more than 15 minutes with us AND didn't get interrupted by two phone calls
) said mum had straight PD, which I assumed to be idiopathic PD.
Renee: Agree with you about comment being terrible. When mum's GP told us it could be Parkinson's he then said "But it could be worse, it could be cancer". Which was bizarre to say the least given the fact my dad passed away with the Big C and mum is also battling it. If I wasn't so distraught maybe I should have retorted "But Doctor, mum has ALSO got the Big C". p.s. Another famous Scot who has PD is Gavin Hastings wife, her story is inspirational.
AB: Yes, Bog here also means to get caught in a quagmire or mire, or the loo. Are the two mutually exclusive?
I think neuro said straight (i.e. idiopathic in my translation) to distinguish between PD and PD+. Though given the fact that I have read up to 25% of PD diagnoses are incorrect (correct diagnosis should be ET or PD+ (eg MSA and PSP)) I am still having sleepless nights thinking about this.
I thought classic would be at least two of TRAP (Tremor, Rigidity, Akinesia and Postural instability). Mum ahs 3 of three and maybe even 4
I'm so glad the links were of use.
Rico My doctor was kind enough to call me "a bit of scaredy cat" when I got into a bit of panic over weeks of sleepless nights caused by three different kinds of pain all indirectly due to Mr. Parkie. I was particularly spooked by a nasty nerve pain in my calves and naturally being only just dx was wondering if this was my future. All my friends jaws dropped when I told them but I don't suppose it pays to be too empathetic as a Doctor or you yourself would end up with the sleepless nights.
Lucky your doctor was kind enough to say that! We wouldn't want him saying anything unkind or hurtful would we?
Hope all going well with you!
im not sure about my pd its bog standard in terms of my symptoms but its not standard with my history, im 32 and was diagnosed last year but seen signs since 27, i have the bog standard pd life of pills and appoinments as anyone else much older would have but my attitude is the difference between getting worse or not i think, without wanting to sound like an arse i run my own buisness making furniture and employ 3 guys i guess doing what you love makes a big difference but i intentionally push myself beyond the parkinsons i believe you can set your own standard and not allow the parkinsons in i have had experiences over the last year when i feel the ropinerole/sinamet cocktail waring off it is possible to take a deep breath and push through as ofeten my work demands it and sometimes i choose to especially with exercise..
the one thing thats the problem iv found is sleep and getting enough i have never been a big sleeper maybe i could catch up on the bog?
Good on you Paul. Sounds like you are making more than a fist of it.
Unf. lack of sleep is one of the myriad of problems associated with this beast
Which can lead to depression in some.
Well done and thank you for your inspirational story