My partner has both PD and high functioning autism. This creates a lot of stress in our relationship through difficulty in communication. Has anyone else experienced this as a carer?
We’re so sorry you and your partner are facing difficulties, Mary5. If either of you or your partner or both of you would like to talk to an advisor please contact us at 0808 800 0303, it is completely confidential.
Take care.
Parkinson’s UK Moderation Team
I have experienced myself becoming more autistic as pd progresses. basically, the parts of my brain that i formerly used to carry out the normal-person protocol is being damaged and also redirected to overriding tremor and just plain exhausted. this has been hard on my partner (and thus indirectly hard on me also).
it helps a bit to learn about autism. some of the topics i found most helpful include:
- monotropism,
- the “double empathy problem”,
- the “intense world” hypothesis
hope this is somehow helpful!