Hi all, hope you are doing well. My hubby was diagnosed 18 months ago, and he is now 39. He started on Madopar in Dec and is also on Azilect. He has very few physical signs, just a right hand tremor, but the cognitive ones are really affecting him - fatigue (like, not able to get out of bed fatigue), inability to make decisions, can't do more than one thing at a time, easily distracted and extremely low mood.
We have been together for 15 years and married for 7. We have a 4 yo and a newborn. I am becoming very unhappy with our life together because of his apathy, depression and mood swings. The person that I knew seems to come and go, he has lost all spontaneity and is often short and withdrawn. When I talk to him now, he does not respond to me, and his facial expressions do not change. So I do not know what he is thinking or even if he has heard me.
I am becoming very afraid that I can't be in this for the long haul, although I feel determined to, it is a thankless ask if he loses his enjoyment in life and can't manage the simple pleasures. I know he is dealing with all the changes and his diagnosis, but I am just terrified that this is the beginning of the end.