I would be interested to know if anyone else has experienced the following miraculous (but temporary) recovery of the capacity to walk.
After 8 years, I am now on a high dose of L-Dopa, taken four times a day, together with Ropinirole. The dopamine gives me up to a four hour window of freedom to move around almost normally. With careful management of my day (when and what to eat, when to take my daytime naps, avoiding too much alcohol and timely medication) it is possible to avoid getting extreme freezing or getting too frustrated.
When outside one of these L-Dopa medicated windows, walking and any other coordinated movement is severely impeded. Except that on about ten occasions now, somehow the ability to walk returns unexpectedly. It usually happens in the mornings when I have taken no dopamine for about 12 hours and have spent the first few hours of the day shuffling around holding on to things. All of a sudden, I can walk, easily, at any speed, as if I don’t have Parkinson’s. I can dance, carry things, in fact do the same things as if I had taken a dose of medication in the last hour, which I definitely hadn’t.
The only possible trigger that I have noticed is that I have recently eaten something and so presumably my blood sugar is on the rise. Is this strange or something other have experienced?
It’s hard to consciously recreate these episodes but it would be nice to be able to understand what’s going on and harness for improved management of my day.
Your thoughts and experiences would be very much appreciated.