Pick up your pallet and walk

I would be interested to know if anyone else has experienced the following miraculous (but temporary) recovery of the capacity to walk.

After 8 years, I am now on a high dose of L-Dopa, taken four times a day, together with Ropinirole. The dopamine gives me up to a four hour window of freedom to move around almost normally. With careful management of my day (when and what to eat, when to take my daytime naps, avoiding too much alcohol and timely medication) it is possible to avoid getting extreme freezing or getting too frustrated.

When outside one of these L-Dopa medicated windows, walking and any other coordinated movement is severely impeded. Except that on about ten occasions now, somehow the ability to walk returns unexpectedly. It usually happens in the mornings when I have taken no dopamine for about 12 hours and have spent the first few hours of the day shuffling around holding on to things. All of a sudden, I can walk, easily, at any speed, as if I don’t have Parkinson’s. I can dance, carry things, in fact do the same things as if I had taken a dose of medication in the last hour, which I definitely hadn’t.

The only possible trigger that I have noticed is that I have recently eaten something and so presumably my blood sugar is on the rise. Is this strange or something other have experienced?

It’s hard to consciously recreate these episodes but it would be nice to be able to understand what’s going on and harness for improved management of my day.

Your thoughts and experiences would be very much appreciated.

Hello PaulDB,

I have no explanation to offer, but so enjoyed reading about your ‘bonus’ moments. As you say, it would be marvellous to be able to harness the process as a factor for how you manage your day.

You sound as though you have established a great routine anyway, which can only be of benefit. Let’s hope these mini-miracles continue.

Up until two years ago, then aged 68, I was able to ride a horse! This was liberating - another creature taking away the chore of walking. I thought it was then prudent to stop, but I so miss it.

Enjoy your dancing and best wishes.

It’s not the sugar…!

When I read AndrewR’s entry on The evils of sugar and the way in which it stimulates serotonin, I thought that must be the explanation. However, following another ‘emancipation’, blood sugar is no longer the front runner for an explanation.

After waking at 6 ish and staggering around for a bit, then sitting at my desk for 90 minute, I shuffled to the garage and my rowing machine. Ten minutes moderate intensity rowing may have been the trigger but for a whole hour I was released from the shackles of Parkinson’s.

Unmedicated, I could carry two heavy bags of rubbish 100metres to the bin store. I then hung out he washing which is normally quite a challenge, followed by some pruning in the garden and other domestic chores.

A whole hour of freedom fuelled by my own dopamine!

Having experienced several more spontaneous periods of unmedicated freedom from Parkinson’s, I’m still very curious to know if anyone else experiences these mini-miracles.
Most often in the morning and most often after moderate exercise, I’m suddenly returned to my pre-Parkinson’s state. Complete freedom of movement for about an hour. No medication involved.
I’m wondering if it’s something to do with mood, feeling relaxed, stress-free and content.