Hi All,
I am in the process of being evaluated for DBS. In the meantime, my condition, especially movement has worsened and I probably now qualify for the upper mobility part, as well as Higher Daily Living element I already qualify for.
I do not know if I will be approved for DBS, but they said surgery is likely to be this year if I am, although it probably won’t be activated for 6 months.
Two questions:
- is it worth me reporting the worsening of my condition now (given I might have had the surgery by the time it’s completed); If I go onto full PIP this, in theory, would mean I am now longer reassessed. In theory, but I should need to inform them of an improvement.
- If I have the surgery and it works well, presumably this should be reported to DWP, and I will the lose the PIP until my condition worsens significantly, and go through the whole assessment process again?
I am scared of the loss of income as it effectively means I will be ‘paying’ (though not really) £6000 per year for the surgery! This will be painful, as you come to rely on this ‘income’ although, hopefully, my living costs will go down.
Won’t stop ME getting it done, but I imagine this has been a consideration for some, especially if they haven’t been working. Has anyone not had the surgery due to this cost?
Any thoughts or advise will be welcome.