I have been refused pips twice now after being diagnosed in January this year on both occasions I have scored 0 which is strange as I have told them that I can’t dress myself or prepare a meal for myself as my wife has to do it I also need my wife to control my tablets I have constant shaking in my right arm shoulder pain and difficulty walking due to a bad back. I also suffer from complex PTSD from my time in the Army and also Goute and Tinnitus.
Please can someone advise me as my next stage is tribunal.
My experience with PIP has only been extremely negative. As well as Parkinson’s I can only walk using crutches due to a severely damaged left leg from a motorcycle smash back in '77. These things make no difference. I scored four. I found the whole PIP thing a complete farce and as far as I am concerned, the government can keep it. I would rather not have it.
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And, I forgot to mention the high levels of PTSD as a result of such a massive trauma at the age of 18 resulting in a mental health crisis ten years later. After thirty years of not coping and being prescribed a drug called trifluoperazine to help me to cope, I now have Parkinson’s. Oh well.
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Hi @Phil61, thank you for reaching out to the forum.
We are sorry to hear about the impact your Parkinson’s is having on your daily life and the challenges you have experienced accessing PIP.
Please know that you are not alone, we are here to help and make sure you are receiving the support you are entitled to. You can call our helpline on 0808 800 0303 or email [email protected] where our trained advisers will be to help and offer advice. They will also be able to guide you through the process if that’s something you need support with.
You can find further information on our website too Money, grants and benefits | Parkinson's UK
Please do get in touch 
Parkinson’s UK Moderation Team
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My advice is to continue the fight to tribunal, but be prepared for a long wait.
I won a tribunal earlier this week after being awarded 0 points at initial application and mandatory reconsideration. It took 22 months from first applying for PIP to get to tribunal. The tribunal awarded enhanced daily living and mobility for 6 years.
When I first applied for PIP in September 2023 I had been diagnosed for 9 years and was on the waiting list for DBS surgery. The health assessor I had clearly didn’t understand what Parkinson’s was and didn’t award any points as a result. Did you have a health assessment? If so, have you requested a copy from the DWP?
The DWP decision makers didn’t sensibly consider the evidence I provided at any stage and didn’t apply the guidance in place. Sadly I don’t think this is uncommon.
I would suggest you seek help from either Parkinson’s UK or other charities who are used to PIP applications as they can give you a good idea of the points you should score and the evidence you need to provide. I had support from Parkinson’s UK, a local Parkinson’s charity who provided a lot of evidence and Bristol Law Centre who prepared a submission to the tribunal on my behalf and accompanied me on the day.
Good luck!
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Hi Paul yes they seem politically motivated and they must have targets they do not understand the pain and shaking that we go through i am taking them to a tribunal