I’m pretty sure I have Parkinson’s. My walking has slowed the last year , frozen shoulder and my fingers are twitching . GP said they would refer me to get checks although didn’t seem convinced. I now have all over body twitches which I think are caused by the extreme anxiety I now have. Surely it doesn’t progress in a few days? I can’t see a way forward and just see myself with no life ahead . I’m traumatised. If I have it is there a way forward.? Sorry
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Hi Alison, and welcome to our friendly forum community. I just wanted to say hi and to let you know that we have a lot of very helpful information on our website at Parkinsons.org.uk. You can also call us at 0808 800 0303 for free and confidential one-on-one support.
I’m sure other members will jump in to welcome you and help to answer your questions. Meanwhile, I’d encourage you to look around and see what you discover.
Best wishes,
Zofia
Forum Moderator
It’s difficult to tell. I went to GP when my left hand became unruly - couldn’t touch my thumb to fingertips and finding it difficult to pick things up - I was told to do a bit of physio. Two years later diagnosed with Parky’s!
With hindsight I can now see that it has been with me for at least 15 years!
It didn’t accelerate quickly for all that time, but in the last year and a half it has really kicked in.
Be persistent. Get a referral to a neurologist. When I was referred, (remember the ‘do physio’) the neurologist watched as I walked to his room, sat me down, and said ‘You’ve got Parkinson’s’ easy as that.
Whatever it is you have, it should be identified, if only for your peace of mind.
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Hi Alison sorry things are difficult at the moment. I had a tremor for over a year but thought it was caused by being on lithium. When I finally spoke to my GP it was a year before I could see a consultant and get a diagnosis of Parkinsons. Please let me assure you that being told one has Parkinsons is not much fun but nor is it a disaster. I take 8 tablets a day, get tired more easily and suffer with anxiety, but compared to friends who have or have had cancer, ms, m.e. ,macular degeneration etc I think I’m quite lucky. I do hope you’ll get a diagnosis soon, everyone on this Forum understands what it’s like. I wish you all the very best.
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I’m sorry you’re having a rough time at the moment. I just wanted to say, if it is Parkinson’s, then there absolutely is a way forward.
Everyone is different, but I find the physical symptoms change a lot when I am stressed or anxious. I take comfort from the fact that Parkinson’s is a fairly slow condition, I feel like at least I have time to adjust to each challenge.
I was diagnosed two years ago, and feel like, although it’s not exactly easy, it is manageable.
Hang in there, and I hope you get some answers soon.
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Change your focus , there are many natural options that can help with PD.
I suspect that your anxious state is making things worse for you, I was in the same place when first diagnosed. Have a look at YouTube for PD and keto diet , PD and intermittent fasting, PD and red light therapy / photomodulation and the success stories will calm you down I am sure , all is not lost .
Hi Lar
It might just be best for Alison to get a diagnosis for her problems rather than trying to treat something she may not have. At this point in time she has not been diagnosed with PD.
Regards
Doug
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Hello Alison,
Please make sure that you have actually been referred to your Neurology department, in order that you have a date to focus on.
Let your GP know that you are feeling extreme anxiety symptoms and he/she may be able to have you moved up the waiting list
If you do have Parkinson’s your life is not over, it is going to be a different kind of normal.
Let us know how you get on.
Graham