My mother is 71 and has been battling Parkinson’s for approximately 15 years. Her general health has declined and she has lost her appetite and lost a shocking amount of weight. She has also lost all mobility and had some speech issues but could still communicate very well 90% of the time. To the point we would still have a laugh and a joke and she had the mental capacity to use internet banking!
She was taken into hospital 2 weeks ago with an infection as she was delusional (this has happened before but she returned to normal when the infection cleared) last Sunday she took a turn for the worse and the on call doctor called us in and said she was unable to breathe unassisted without oxygen. He said she was too frail to intubate and we should say our goodbyes. We were very shocked. She was unable to talk or breathe properly and we were told she would probably pass away. She did not, and this last week has been a living hell. Basically the doctors are saying that she has a severe chest infection and that she is not responding to antibiotics - this last week she has been conscious but unable to eat, drink or talk. Her swallow has stopped working and she is unable to do any of those things. However she is quite alert, makes eye contact and answers yes or no with moans when we ask her questions.
They keep talking about keeping her comfortable and are basically saying she won’t recover and that because there has been no real improvement (her blood pressure, heart rate and blood oxygen levels are all good?!) they will stop treatment on Monday and keep her comfortable while she passes away.
I feel very strongly that I don’t want her to suffer of course. However I can’t help but think that she can’t eat, talk and drink because she is not having her meds. She was on a full regime including sinimet, madopar and various other tablets. Now all she is having is a patch of 16g daily of neupro because she cannot swallow her tablets. But I can’t help but feel if she could have her other medications she would improve and they would give her time to recover instead of just acting like she has no hope.
I want to do what’s best for her. Should I demand to involve a Parkinson’s specialist before they stop treatment. I would never forgive myself if I felt I hadn’t done everything to fight for her while she has no voice, but I also want her to have peace if that’s the best thing.
Any advice at all would be so gratefully appreciated.