October 2015 I was at the gym and couldn’t work out why I was having trouble balancing on 1 leg while I stretched. Cut to February 2017, and 7 neurologists in 4 countries later, and lucky #7 orders a PET Scan (what you would call a DATSCAN) which finally confirmed a less active Cerebellum and Basal Ganglia.
So, give or take, I’ve been thrown in the MSA basket.
My walking is not much better than staggering and my arms are about 40% affected, with slow movements overall.
I’m on Madopar 100/25 x 5 every 3 hours, and Komtan and amantadin as boosters.
One of my burning questions is this: my Madopar only lasts about 30mins and then I am virtually immobile in a chair or the balance of the 3 hours waiting for anther dopamine hit. This has driven me to taking another couple of Madopar here and there during the day
Q: what am I looking at facing going beyond my prescribed dose?
Does anyone have this type of experience with Madopar ?
What are the other Madopar complements worth investigating?
Thanks guys…great to be here.