Went back to neuro on Monday, for results of tests. Was being tested for MS and functioning epilepsy. ( never got results from my EEG)). She did other tests, one hitting or flicking me in the head ( wanted to flick her back) then I thought she was about to break my wrists. (Aggressive neuro??
) also made me copy a spiral and write my name and address, and got me to walk up and down as well as finger tap. To say the least failed all tests with flying colours. Then she says too me, that I have a postural tremor, and something to do with a resting tremor, but not pill rolling type tremor. Yet I meet Parkinsim ( not sure of spelling) characteristics. Ie some cog wheeling? Small handwriting, shuffling gait, Bradykinesia. Then starts to explain what that means. She sent me for another MRI to check for illnesses like stroke, MSA plus other illnesses. So still dealing from it even though I was starting to think I may have PD. If tests come back negative.then I think I will have a PD confirmed diagnosis. I go back to neuro in August ( live in Australia) . Then I think she was talking about medication, yet not sure if she said they like to get it started early or they don’t like to medicate early. If medicated do all the symptoms disappear, like the pain, brain fog, tiredness, body not so rigid, you don’t shuffle anymore?. Apparently side of my mouth tends to droop. When heard of possible diagnosis I shed a few tears, mainly because of relief. Yet going into my third day of hearing I think you may have PD, I am now thinking am I faking the illness, is it all in my head. Is this part of denial? I know I am in pain, I have tremors, I lean to one side when sitting, etc etc etc.
is there side effects to the medication, and if put on it should I take time off work for me to adjust or there are no drastic side effects.? Before August I want to be able to ask some of these questions. If a PD diagnosis, what happens if I refuse to medicate and is there another non invasive alternative?
Thankyou.
Hi @Lisa1968,
It sounds like you have had quite an upheaval journey so far which I’m sure hasn’t been easy. In light of the information you’ve shared, it sounds like you have symptoms related to Parkinson’s, however, I think you should wait until you receive an official diagnosis so you know for sure.
Every person with Parkinson’s has a different experience of the condition so your specialist or Parkinson’s nurse will work with you to find the treatment that is best for you as an individual. It’s completely understandable if you have reservations about PD drugs which is why we have extensive information on this via our website here - https://www.parkinsons.org.uk/information-and-support/drug-treatments.
All prescribed drugs can have potential side effects, including those used to treat Parkinson’s. Some things you think are symptoms of Parkinson’s may actually be side effects of medication.
If you’d like to speak to someone in more detail about any concerns you have, you’re more than welcome to speak to one of our advisers via our helpline on 0808 800 0303 or email us at [email protected].
Best wishes,
Reah