Has anyone had experience of the new drug Produodopa please
Yes, i have some experience.
I have asked to be considered for this and was told it will be years before it gets to my town, The hospital has to apply for it and invest in the training of specialist nurses, I can’t even get on a waiting list. Sounds like another postcode lottery. Hopes dashed
I started it monday gone , early days - 5 th!
But so far so good
I have two very proactive pd nurses- its funded differently, not out of hospital or gps budget
You need to ask
Do not wait to be asked x
Its how i got this and how i got myself on gdnf trial x
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Is it working fot you.
I received Produodopa, but I don’t feel well.
David, how is the pump working for you? What is your current base level for the mediation? Thank you so much for your help.
Sim good day, I wanted to see if you have been able to adjust to the pump yet. My dad started with the pump 2 weeks ago but is not seeing much improvement we wanted to see how others are doing. Any help you can provide would be great. Thank you
I’ve had it 5 weeks and can now change rates as well as boost, restricted to every 4 hours. I lower the rate at night. We’re still in the process of tweaking the dosage but, even with “off” periods it’s an improvement on the tablets. I’m mobile for longer and more active than before.
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