Hello, I am starting on duodopa and have had the PEG-J tube fitted. From Monday I will be in hospital for five days to come off my current medication and find the right dose of the gel. Is there anyone who can give me some sense of what this is like - anything from how hard it is to stop medication however briefly to whether you had loads of spare time to fill.
Hi @bbman and welcome to the forum community.
I’m sure some of our helpful members will be along soon to say hello and share their experience.
In the meantime if you need more support you could contact our helpline, our helpful advisers are able to offer information and support on all aspects of life with parkinsons. They can also put you in touch with one our specialist parkinson’s nurse advisers who may be able to explain more about starting duodopa and answer your questions - although I fully understand it may be more first hand personal experiences you are looking for.
If you did wish to access the helpline they are open 9am-7pm Monday to Friday and 10am-2pm on Saturday. You can contact us on 0808 800 0303 or [email protected]
I hope that helps a little and please do feel free to continue using the forum as a source of information and support.
Corinne - forum moderation team.