I am getting very worried with how quickly my partner’s Parkinson’s seems to be progressing. He was diagnosed in 2014 and is taking 125mg of Madopar five times a day and 6mg of Repinex a day. This hasn’t been altered for years. He displays all the symptoms of dementia but the most recent MRI scan shows no change since the last in 2015, so his neurology has dismissed it. He did get my partner to do a memory test but then said he was taking too long to complete it and we were sent off so he could see his next patient.
He constantly asks the same questions, personal hygiene is virtually non existent, forgets words, dates and times. Last night he got up 6 times, each time convinced it was the next day. Verbal aggression then follows as everything is me being nasty or doing it to be awkward.
I can hardly make out what he says now, his face muscles are even more frozen and everything comes out slurred.
And now the hallucinations have started. Mainly people, a tramp sitting and smoking in the neighbour’s garden, twitchers standing at our front gate, a man with a clipboard living in a rubble bag, an archaeology dig - the list is endless.
There is 14 years difference between us and I feel selfish wondering how to cope with how this horrendous disease is affecting him. Every day seems worse.
GP appointments are rarer than hen’s teeth, the Parkinson’s nurse should see him every 6 months and it is often over a year. The last time we saw her she was so patronising, even suggesting we could do with counselling as we obviously saw things very differently.
Can anyone say they face anything similar as I am feeling completely alone and very scared of what the future holds.