I was recently diagnosed on the 1st July following a Datscan in March to rule out Parkinson’s. As you can imagine it was a complete shock.
The consultant just said not to worry to talk to my GP and he would see me in 6 months
I saw my GP a few days later to pick up meds (Madopar) and they gave me lots of printouts from NHS website but no other support available.
When I went to pick up my second prescription I saw a second GP who was not at all helpful and said he hadn’t worked with anyone with Parkinson’s my age before (I’m 48) and didn’t really know much about it in younger people.
He put meds on repeat prescription and said he would see me again after I saw the consultant if he needed to.
I feel totally abandoned with no one to talk to and no support when I have so many questions.
Learning more about the symptoms it’s obvious they have been around longer than the two years since my tremor became noticeable.
I have no idea what the future holds and so many questions