Hi all,
Recently diagnosed at 55,
I have my first appointment with my parkinsons nurse in April, also a follow-up telephone with my Neurologist.
I’m currently on care-ldopa 1 tablet ,3 times a day ,im struggling to know how im supposed to feel my wife thinks I should be bouncing of the walls ,having good days and bad days get tired quickly as work in construction, when I get the right dose of meds will work get easier ?
Thanks Neil
Hi Jona56, thank you for your message and welcome to our forum.
It’s not unusual for people with Parkinson’s to have good days and bad days, particularly while you’re managing medication. We’d encourage you to speak with your Parkinson’s nurse or neurologist about the tiredness you’re experiencing as they may be able to suggest things that will help.
If you’d like to speak to someone before April, you can also give our free helpline a call. One of our Parkinson’s nurses can chat with you about what you’re experiencing and offer their thoughts and advice: 0808 800 0303.
We hope that our lovely forum members will be able to share their own experiences with you too.
Sending all our love,
The Parkinson’s UK Moderation Team
Evening Neil .. Sorry to be about your diagnosis. I am 72 & was diagnosed about 3 years ago. I too am on Co careldopa. I take 2 pills x 3 times a day. So I expect your dose will be doubled shortly.
Medication is all there is for Parkinson’s at the moment. Your Parkinson’s nurse will be more help than your neurologist. She or he will monitor how you are getting on with the medication. I am also on Rasagiline, 1 pill a day. I think the Co careldopa is the best drug to be on. I have tried others.
It does take a little while for your body to get used to the medication. There may be side effects like sleep difficulties.
Any questions do ask.
The Parkinson’s nurses here are free to talk to & are very knowledgeable.
Best wishes
Steve2
Hi Neil, I’m really sorry you’re going through this, it’s a lot to take in. It’s completely normal not to feel “amazing” right away; finding the right medication dose takes time, and energy levels can still vary day to day. Many people do find work gets more manageable once meds are adjusted, but pacing yourself is key.
Your Parkinson’s nurse will be a big help, hang in there, you’re not alone in this. 