Recently diagnosed


#1

Hi,

I was diagnosed early this year though it seems that I have had it for two or three years. That explains a lot!

I am 60 and married, living in Lincolnshire.

Struggling with it a bit and very concerned about the future.

I hope to gain a bit of information and support from the forum and will post some more soon.

Chris


#2

Hi Chris,

Welcome to the forum. Sorry to hear that you are struggling and concerned for the future. The forum is a great place for support and to share experiences but if you need any particular information or just want a chat please do call our free Helpline on 0808 800 0303.We are open on Monday-Friday 9am-7pm and on Saturday 10am-2pm.

You can also find more information including local groups and publications at: https://www.parkinsons.org.uk/content/support-you

I hope this helps.
Best wishes,

Joanne 


#3

Hi Chris,

I'm 66 and live in Yorkshire.

I was diagnosed 3yrs. ago and like you, struggled to come to terms with everything. My neurologist said that by the time symptoms show, I've probably had it for decades! 

I read up on PD by googling it and reading posts on this Forum, which helped a lot......although sometimes a bit scary! The frustrating part of having this disease is that it can affect everyone in different ways at different times. No-one can actually tell you what's going to happen to YOU.

I have accepted therapies on offer....physio, psychology and had a 'home visit' from our local Support Worker, which was very helpful. You are very much left to be in charge of your own future and how you cope, I have found.

Stress and lack of sleep make the condition worse. I have recently been practising the art of Mindfulness, which is very relaxing.

I hope all goes well for you......you are not alone.